Sample Image

Our Story

On October 11, 2011 at the age of 10 months, Addilyn was diagnosed with PFIC-2 (Progressive Familial Intrahepatic Cholestasis Type-2), a rare genetic liver disease which causes liver failure. There is no cure for this terminal disease. 

It's been a long steady road but here we are. We have experienced 6 wonderful years of stability as far as Addi's disease is concerned. However, her liver has now decided it cannot hold on any longer. Addilyn has severe cirrhosis or liver scarring, which results in poor liver function. During the past year her blood work has had several spikes and dives. She was seen last month during an emergency visit because we were concerned about increased jaundice. Her jaundice has gotten increasingly worse since. A few of her other tests have gotten worse as well.

The transplant team at Denver Children's Hospital has begin the process toward transplant. The only way symptoms of this disease can be reversed is with liver transplantation. She will need a...

Featured Post

Transplant scheduled

This sweet girl will be receiving her new liver on December 18th! Just in time to celebrate another year of life. We can’t thank her donor enough!

#addiscomeback #yourtearswerenotawaste

Continue Reading »

Updates

 

Pediatric doctor visit

It certainly seems to get harder before it gets easier doesn’t it? Yesterday Addi was diagnosed with pneumonia. They started her on antibiotics. They swabbed her for a large panel of viruses as well. If results show she is fighting a virus, her Continue Reading »

Our little fisher-girl!

Our fisher-girl!  A little afternoon shore fishing with her Papa and Uncle Mike. Continue Reading »

"Chosen"

We are so thankful for this sweet girl. Before she was born God gave us the name Addi, which means “Chosen”. She has touched so many lives throughout her almost seven years of life. Her smile radiates joy. She’s a giver. We do believe she was Continue Reading »

Transplant scheduled

This sweet girl will be receiving her new liver on December 18th! Just in time to celebrate another year of life. We can’t thank her donor enough! Continue Reading »

Living donor selected

A living donor was finally selected for Addilyn! Her transplant is scheduled for December 18th. Please keep the Hawks Family, especially Addi, in your thoughts and prayers. We are very nervous/scared/anxious/excited/happy. What an amazing 7th Continue Reading »

Update on Addilyn

Continue Reading »

Liver Transplant Evaluation

Despite 3 shots, 2 blood draws, an echocardiogram, an EKG, chest x-ray, 2 CT scans with IV contrast and countless interviews and meetings, Addi has remained joyful as can be and her playful self! She is so amazing and so incredibly brave. She is Continue Reading »

Family hike in the Rocky Mountain National Park

8 Photos

Family time in the Rocky Mountain National Park!

We are trying to spend as much time together as a family before Addi's transplant. There is really no better place than Rocky Mountain National Park. Addi is such a trooper and even hiked 5 miles yesterday!  Continue Reading »

It's time!

It's been a long steady road but here we are. We have experienced 6 wonderful years of stability as far as Addi's disease is concerned. However, her liver has now decided it cannot hold on any longer. During the past year her blood work has had Continue Reading »