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Update on Addilyn

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Liver Transplant Evaluation

Despite 3 shots, 2 blood draws, an echocardiogram, an EKG, chest x-ray, 2 CT scans with IV contrast and countless interviews and meetings, Addi has remained joyful as can be and her playful self! She is so amazing and so incredibly brave. She is Continue Reading »

Family time in the Rocky Mountain National Park!

We are trying to spend as much time together as a family before Addi's transplant. There is really no better place than Rocky Mountain National Park. Addi is such a trooper and even hiked 5 miles yesterday! 

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It's time!

It's been a long steady road but here we are. We have experienced 6 wonderful years of stability as far as Addi's disease is concerned. However, her liver has now decided it cannot hold on any longer. During the past year her blood work has had Continue Reading »