Hi all, One word to describe the day so far: yoyo. We had plans to make wean progress on his vent this morning, but by this afternoon there...

Jace Jones had an eventful morning. When his respiratory therapists (RT) went to retape and reposition his ET (breathing) tube, his O2 sats plummeted (to the teens, on...

We had some unexpected challenges over the past 48 hours. Jace had been doing well and recovering from his 1st PICU stay, with weaning multiple Meds and PT/OT....

Day +27 through +34 His kidneys started to function with the help of diuretics, and the main focus is to continue to eliminate the extra fluid that has...

Day +19 The fluid accumulation in his abdomen has been lessened by draining and pulling excess fluid off through his continuous dialysis, so there is no need for...

Jace is still stable, they are still tweaking his sedation and pain meds to get him to a comfortable state, but he is stable and that's a positive...

Jace Jones has been in back to back surgeries/procedures from 9:30am-7pm getting multiple lines placed. He had two more central lines placed, an arterial and a PIV. He...

Here is the newest update on Jace. His kidneys started failing last night so they took him to surgery this morning to place a central line for continuous...

One of many milestones :) one whole week post transplant and our little guy is doing so well! He did come down with his first (of many possible...

So many things have happened over the past few days.  Here is a recap! Transplant 9/7/2017 Day 0 We had a wonderful blessing of donor cells prior to...