Our Story
Rafe is a sweet, energetic 4 year old little boy who has been in the fight of his life since the day after Thanksgiving 2020. He started not feeling well and was referred to OU Children's medical center in OKC. His condition continued to decline despite all the doctor's efforts and on Tuesday, Dec 8, 2020, Rafe was flown by air ambulance from OU Children's to Cincinnati Children's to be...
Continue Reading »Updates
First Day of Pre-K
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It’s hard to believe that just 8 short months ago there were times that we didn’t know if we would ever hear Rafe laugh again, talk, or if... Continue Reading »
Summer Fun
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A lot has happened since our last post. Rafe celebrated being six months post liver transplant on June 18th and we have spent the month celebrating each and... Continue Reading »
Summer
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ER Visit/Croup
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Rafe woke up at 2:00 AM Saturday morning not able to breathe. He woke up out of nowhere with "stridor" breathing saying he couldn't breathe and felt like... Continue Reading »
Cornhole for COTA for Rafe’s Fight
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Cornhole for COTA for Rafe's Fight was a great success! Lost Street Brewery hosted a cornhole tournament for COTA for Rafe's fight. We had a great turnout. Despite a... Continue Reading »
What caused Rafe’s liver failure?
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The number one question we get asked is- What happened? What caused Rafe's liver to fail? Why, in only 18 days, did our seemingly healthy little boy need... Continue Reading »
May Check up / Hospital Stay
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Rafe had a doctors appointment Tuesday with his doctor in OKC. It was his first time for labwork since removing his PICC line. He had a really hard... Continue Reading »