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With the cost of a transplant often exceeding $500,000, plus a lifetime of medical expenses, transplant patients are unable to shoulder the financial burden on their own. The Children’s Organ Transplant Association (COTA) is a national charity dedicated to organizing and guiding communities in raising funds for children like Stanley Gleason-Allured in Brooklyn, New York.

Born in January 2016, Stanley was diagnosed with biliary atresia at 8 weeks old, and he received a life-saving liver transplant at 6 months of age at Morgan Stanley Children's Hospital in New York City. 100% of the funds raised through this page will assist with transplant-related expenses and be available for Stanley's lifetime.

Comments

  • Rick Lofgren, COTA President

    Greetings from COTA! I want to congratulate the COTA for Stanley G volunteer team for an outstanding job raising funds for the campaign in honor of little Stanley! When I set the campaign fundraising goals with all of our families, I try to do so knowing that some communities and volunteer teams have more developed resources and connections than others, and in fundraising these are critical to success. With this in mind, I usually suggest a goal to COTA patients that I believe is needed for any patient’s long-term expenses and transplant-related costs, and the goal generally reflects the next four to five years of out-of-pocket costs. For example, most of our patients will have $5,000 in annual co-payments, deductibles, and medications, as well as $7,500 or more of additional costs for clinic visits. This could mean $15,000 - $30,000 for these costs alone for any patient in two or three years after transplant. In this case, because your team and supporters have done such a great job, and with Stanley’s ongoing care as he recovers from his transplant at Children’s, I spoke with Amber and suggested that we raise the goal to better reflect what I believe is the true long-term expense that a patient will incur given age, insurance and other factors for someone going through her situation in the coming months and years. Because of this, I have raised the goal for the COTA for Stanley G campaign group from $50,000 to $75,000 to reflect what I believe will be actual costs going forward. Please know there are many factors in this and that I bear the responsibility of justifying this to anyone who asks, and am prepared to do this as I believe that it is the right thing to do. I want to convey that this is not a request for everyone to go out and do more than previously planned, but simply a reflection of realistic long-term costs. Thank you for all the work and support you have provided to this point, and please keep Stanley, Amber and Jeb in your prayers as he continues along this transplant journey!

  • Mary McCarthy

    Sending all our prayers and love for sweet Stanley. I am a BA and Transplant Mom. Our son is now 24 years old and 23 years post transplant. The gift of life is amazing and our gratitude is endless. Wishing all the best for Stanley and his wonderful parents and family. Love, The McCarthy's

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