Our Story
On May 23rd, 2000, our sweet Hannah entered this world as a BEAUTIFUL healthy baby girl. The day she was to come home, it was found that her heart rate was very low. She stayed for an extra night for monitoring as no infections or other symptoms were found. After 6 months of cardiology care including EKG's, Echocardiagrams, and check ups, it was determined that Hannah's heart was functioning properly...
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6 Month Update
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Sometimes it hits you....This is not a cure. Heart transplant is the only treatment for Danon. Hannah will have her 6 month heart cath and biopsy tomorrow morning... Continue Reading »
Our Hannah
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