Our Story
Allison is currently too sick to write about herself for this site, so we’ve taken the liberty to share her story on her behalf.Allie was diagnosed with cystic fibrosis when she was 18 months old. She has had countless hospitalizations over the years since her diagnosis and does multiple daily treatments to delay the inevitable loss of lung function. Despite the toll her disease takes on her, she lives life with...
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Allie and Scott are back home, reunited with their little boy. She's doing well and is getting settled in their apartment. Blake is a busy little 16 month... Continue Reading »
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Events
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Preparing to come home
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It wont be long, folks. She’s getting close!! This is a long post but important as Allie gets closer to coming home. She is now and always... Continue Reading »
The ups and downs, all worth it.
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It is now 7 weeks post transplant. As far as the actual surgery and her breathing goes, Allie’s been doing very well. She had her first outpatient bronchoscopy... Continue Reading »
Out of the hospital! Another hurdle crossed!
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Allie was discharged from UPMC Presbyterian 5 days ago, on Thursday March 22. I can definitely see that she is getting a little stronger every day. She had... Continue Reading »
Day 22 Post Transplant
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It’s been 22 days since Allie’s transplant. The last update I posted had what turned out to be a very ambitious plan that didn’t quite happen on the... Continue Reading »
Two weeks post op update
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Two weeks and 1 day post-op today. Allie continues to progress on schedule (translate – she is wowing Scott and I). Yesterday she passed her swallowing evaluation with... Continue Reading »
2 more chest tubes out
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Adding to yesterday’s update, 2 more chest tubes removed today she went from 7 chest tubes down to 2. It’s hard to believe all those big Blake tubes... Continue Reading »