COTA
GIVE HOPE
MAKE A MIRACLE
Transplant Families Resources
Here are some resources to help you
through your transplant journey.
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Organ, Tissue and Bone Marrow Resources
American Association of Tissue Banks
www.aatb.org
American Society of Transplantation
www.a-s-t.org
Blood and Marrow Transplant Information Network
www.BMTInfoNet.org
Donate Life America
www.DonateLife.net
Gift of Life
www.GiftDonor.org
The Gift of a Lifetime
www.OrganTransplant.org
International Transplant Nurses Society
www.itns.org
James Redford Institute for Transplant Awareness
www.jrifilms.org
National Bone Marrow Transplant Link
www.nbntlink.org
National Institutes of Health
www.nih.gov
National Kidney Foundation
www.kidney.org
National Living Donor Assistance Center
www.LivingDonorAssistance.org
National Marrow Donor Program
www.marrow.org
National Minority Organ Tissue Transplant Education Program
www.mottep.org
NATCO - Organization of Transplant Professionals
www.natco1.org
Transplant Experience
www.TransplantExperience.com
Transplant Living
www.TransplantLiving.org
Transplant Recipients International Organization
www.trioweb.org
TransWeb
www.med.umich.edu/trans/transweb
U.S. Government Information on Organ & Tissue Donation and Transplantation
www.OrganDonor.gov
UNOS - United Network for Organ Sharing
www.unos.org
UNOS Patient Education Web site
www.TransplantLiving.org
State Organ and Tissue Donor Registries
Alabama
www.AlabamaOrganCenter.org
Alaska
www.AlaskaDonorRegistry.gov
Arizona
www.AZDonorRegistry.org
Arkansas
www.arora.org
California
www.DonateLifeCalifornia.org
Colorado
www.ColoradoDonorRegistry.org
Connecticut
www.ct.gov/dmv
Delaware
www.DonateLife-DE.org
District of Columbia
www.DonateLifeDC.org
Florida
www.ahca.myflorida.com
Georgia
www.dds.ga.gov/drivers
Hawaii
www.OrganDonorHawaii.com
Idaho
www.YesIdaho.com
Illinois
www.ilsos.gov/OrganDonorRegister
Indiana
www.DonateLifeIndiana.org
Iowa
www.IowaDonorRegistry.org
Kansas
www.mwob.org
Kentucky
www.mwob.org
Louisiana
www.iopa.org
Maine
www.maine.gov/sos/bmv/organ
Maryland
www.marylandmva.com/MVAProgram/Organ
Massachusetts
www.neob.org
Michigan
www.GiftofLifeMichigan.org
Minnesota
www.DonateLifeMN.org
Mississippi
www.msora.org
Missouri
www.dhss.mo.gov/OrganDonor
Montana
www.DonateLifeToday.com
Nebraska
www.NEDonation.org
Nevada
www.NVDonor.org
New Hampshire
www.neob.org
New Jersey
www.state.nj.us/mvc.licenses
New Mexico
www.DonateLifeMN.org
New York
www.health.state.ny.us/professionals/patients/donation
North Carolina
www.ncdot.org/dmv
North Dakota
www.life-source.org
Ohio
www.DonateLifeOhio.org
Oklahoma
www.LifeShareRegistry.org
Oregon
www.DonateLifeNW.org
Pennsylvania
www.DOnateLife-PA.org
Puerto Rico
www.LifeLinkFound.org
Rhode Island
www.dmv.ri.gov/new
South Carolina
www.DonateLifeSC.org
South Dakota
www.state.sd.us/dps/dl
Tennessee
www.DonateLifeTN.org
Texas
www.DonateLifeTexas.org
Utah
www.YesUtah.org
Vermont
www.dmv.org/vt-vermont/organ-donor
Virginia
www.Save7Lifes.org
Washington
www.DonateLifeToday.com
West Virginia
www.wvdot.com
Wisconsin
www.dot.wisconsin.gov/drivers
Wyoming
www.WyomingDonorRegistry.org
Organ Procurement Organizations
Alabama Organ Center
www.AlabamaOrganCenter.org
Arkansas Regional Organ Recovery Agency
www.arora.org
Association of Organ Procurement Organizations
www.aopo.org
California Transplant Donor Network
www.ctdn.org
Carolina Donor Services
www.CarolineDonorServices.org
Center for Donation & Transplant
www.cdtny.org
Center for Organ Recovery and Education
www.core.org
Donor Alliance, Inc.
www.DonorAlliance.org
Donor Network of Arizona
www.dnaz.org
Finger Lakes Donor Recovery Network
www.DonorRecovery.org
Gift of Hope Organ & Tissue Donor Network
www.GiftofHope.org
Gift of Life Donor Program
www.Donors1.org
Gift of Life Michigan
www.tsm-GiftofLife.org
Golden State Donor Services
www.gsds.org
Indiana Organ Procurement Organization
www.iopo.org
Intermountain Donor Services
www.idslife.org
Kentucky Organ Donor Affiliates
www.KYOrganDonor.org
Life Alliance Organ Recovery Agency
www.
Life Connection of Ohio
www.LifeConnectionofOhio.org
Life Sharing Community Organ Donation
www.LifeSharing.org
LifeBanc
www.LifeBanc.org
LifeCenter Northwest
www.lcnw.org
LifeCenter Organ Donor Network
www.LifePassItOn.org
LifeChoice Donor Services
www.LifeChoiceOPO.org
LifeGift Organ Donation Center
www.LifeGift.org
Lifeline of Ohio Organ Procurement Agency
www.LifelineofOhio.org
LifeLink
www.LifeLinkFound.org
LifeNet
www.lifenert.org
LifePoint
www.LifePoint-sc.org
LifeQuest
www.LifeQuestFla.org
LifeShare of the Carolinas
www.LifeShareCarolinas.org
LifeShare Transplant Donor Services of Oklahoma
www.LifeShareOklahoma.org
LifeSource - Upper Midwest Organ Procurement
www.life-source.org
Louisiana Organ Procurement Agency
www.lopa.org
Mid-America Transplant Services
www.mts-stl.org
Mid-South Transplant Foundation
www.MidsouthTransplant.org
Mississippi Organ Recovery Agency
www.msora.org
Nebraska Organ Retrieval System, Inc.
www.NEDonation.org
Nevada Donor Network, Inc.
www.NVDonor.org
New England Organ Bank
www.neob.org
New Jersey Organ & Tissue Sharing Network
www.ShareNJ.org
New Mexico Donor Services
www.dcids.org
New York Organ Donor Network
www.DonateLifeNY.org
OneLegacy
www.onelegacy.org
Organ Donor Center of Hawaii
www.OrganDonorHawaii.com
Pacific Northwest Transplant Bank
www.pntb.org
Southwest Transplant Alliance
www.organ.org
Tennessee Donor Services
www.DonateLifeTN.org
Texas Organ Sharing Alliance
www.TXOrganSharing.org
TransLife
www.TransLife.org
Transplant Resource of Maryland
www.MDTransplant.org
Upstate New York Transplant Services
www.unyts.org
Washington Regional Transplant Consortium
www.BeADonor.org
Wisconsin Donor Network
www.WisDonorNetwork.orgg
Organ and Disease Specific Organizations
Alpha-1 Association
www.alpha1.org
American Association for the Study of Liver Diseases
www.aasld.org
American Cancer Society
www.cancer.org
American Heart Association
www.AmericanHeart.org
American Kidney Fund
www.KidneyFund.org
American Liver Foundation
www.LiverFoundation.org
American Liver Society
www.LiverSociety.org
American Lung Association
www.LungUSA.org
American Society of Clinical Oncology
www.asco.org
The Cancer Care Counseling
www.cancercare.org
Cystic Fibrosis Foundation
www.cff.org
Hepatitis C Outreach Program
www.hcop.org
Kidney School
www.KidneySchool.org
The LAM Foundation
www.theLAMFoundation.org
Mesothelioma Treatment
www.asbestos.com
National Cancer Institute
www.cancer.gov
National Children's Cancer Society
www.Children-Cancer.com
National Kidney Foundation
www.kidney.org
National Organization for Rare Diseases
www.RareDiseases.org
OncoLink
www.oncolink.upenn.edu
Polycystic Kidney Disease Foundation
www.pdkcure.org
Sarcoidosis Awareness Network
www.SarcoidosisNetwork.
Second Wind Lung Transplant Association
www.2ndWind.org
Sickle Cell Disease Association of America
www.SickleCellDisease.org
Transplant Buddies
www.TransplantBuddies.org
Transplant Friends
www.TransplantFriends.net
TransplantDiscussion
www.TransplantDiscussion.org
Transplant Café
www.TransplantCafe.com
Transplant Groups
www.TransplantGroups.com
Abbott Patient Assistance Program
www.abbott.com/
Amber Pharmacy
www.AmberPharmacy.com
Astellas Patient Assistance Program for Organ Transplant
www.us.astellas.com/therapeutic/product/patients_assistance.html
Caring Voice
www.CaringVoice.org
CellCept for Living
www.CellCeptforLiving.com
Free Medicine Program
www.FreeMedicineProgram.com
Good Life Resources
www.GoodLifeResources.com
The Healthwell Foundation
www.HealthwellFoundation.org
HHCS Health Group and Cystic Fibrosis Pharmacy
www.cfpharmcy.com
Kidney Drug Coverage
www.KidneyDrugCoverage.org
The Leukemia & Lymphoma Society Co-Pay Assistance Program
www.Leukemia-Lymphoma.org
Managed Rx Plans
www.ManagedRXPlans.com
Needy Meds, Inc.
www.NeedyMeds.net
Novartis Patient Assistance Program
www.pharma.us.novartis.com
Novartis Transplant Reimbursement Information
www.myfortic.com/hcp/reimbursement/hcp_hotline.jsp
Partnership for Prescription Assistance
www.pparx.org
Patient Advocate Foundation
www.copays.org
Patient Assistance Program
www.PatientAssistance.com
Prescription Management Organization
www.pmorx.com
Roche Patient Assistance Program
www.gene.com/gene/products/access/roche/
RxHope
www.RXHope.com
Together Rx Access
www.TogetherRXAccess.com
Transplant Experience
www.TransplantExperience.com
Wyeth Patient Assistance Program
www.Wyeth.com
State Prescription Assistance Programs
Alabama SenioRx
www.adss.state.al.us/seniorx.cfm
Connecticut Pharmaceutical Assistance Contract to the Elderly and the Disabled
www.connpace.com/
Delaware Prescription Assistance Program
www.dhss.delaware.gov/dhss/dss/dpap.html
District of ColumbiaHealthcare Alliance
ssc.rrc.dc.gov/ssc/cwp/view,a,1218,q,455346.asp
Florida Discount Drug Card Program
www.floridadiscountdrugcard.com/
Georgia Partnership for Caring Foundation
www.dfcs.dhr.georgia.gov/portal/site/DHS-DFCS/menuitem.76e501556de17147077a8110da1010a0/?vgnextoid=bc64938a16271010VgnVCM100000bf01010aRCRD
GeorgiaCares
www.gacares.org
Hawaii Rx Plus
hawaii.gov/dhs/dhs/rx_plus
Illinois Pharmaceutical Assistance Program
www.state.il.us/aging/3hot/pharm-assist.htm
Indiana-Hoosier Rx
www.in.gov/fssa/ompp/2669.htm
Kentucky-Health Kentucky
www.healthkentucky.org/
Maine-Rx Plus
maine.gov/dhhs/mainerx/
Maryland-Medbank Program
www.medbankmd.org/
Maryland-Pharmacy Assistance Program
www.dhmh.state.md.us/mma/mpap/
Michigan-Elder Prescription Insurance Coverage
www.michigan.gov/som/0,1607,7-192-29942_32527_32555-3121--,00.html
Minnesota-Prescription Drug Programs
www.ahirc.org/redirect
Missouri-Rx Program
www.morx.mo.gov/
New Hampshire-Medication Bridge
www.nhha.org/fhc/initiatives/access/medicationbridge.php
New Jersey-Pharmaceutical Assistance to the Aged & Disabled
www.state.nj.us/health/seniorbenefits/index.shtml
New York-Elderly Pharmaceutical Insurance Coverage Program
www.health.state.ny.us/health_care/epic/index.htm
North Carolina-Senior Care Program
www.ncdoi.com/Consumer/Shiip/Shiip.asp
Ohio-Golden Buckeye Card Program
aging.ohio.gov/families/buckeye.html
Oregon-Senior Prescription Drug Assistance Program
www.oregon.gov/DCBS/SHIBA/index.shtml
Rhode Island-Pharmaceutical Assistance for the Elderly
www.dea.ri.gov/programs/prescription_assist.php
Tennessee-AccessTN
www.covertn.gov/web/access_tn.html
West Virginia-Golden Mountaineer Discount Card Program
www.wvseniorservices.gov/GettingAnswers/OverviewofAgingProgramsInWestVirginia/
GoldenMountaineerCardApplication/tabid/107/Default.aspx
Wisconsin-Senior Care
dhs.wisconsin.gov/seniorcare/index.htm
Wyoming-Prescription Drug Assistance Program
wdh.state.wy.us/healthcarefin/pharmacy/pdap.html
American Academy on Communication in Healthcare
American Cancer Society
American Diabetes Association
American Medical Association
American Red Cross
Aplastic Anemia & MDS International Foundation, Inc.
ARCH National Respite Network
Caring Connections
Centers for Disease Control
Change:Healthcare
Charity Navigator
Cystic Fibrosis Foundation
Gilda's Club Worldwide
GuideStar
Healing Project
Healthfinder.gov
Inspire
Leukemia and Lymphoma Society
Lymphoma Research Foundation
Massachusetts Enhanced Coordination of Benefits Program (ECOB)
My Friends Care Cancer Fund
MyLifeLine.org
National Foundation of Dentistry for the Handicapped (NFDH)
National Institute of Diabetes and Digestive Kidney Disease (NIDDK)
National Library of Medicine
National Organization for Rare Disorders, Inc. (NORD)
SAMFund for Young Adult Survivors of Cancer
Smart Medical Consumer
Special Needs Family Fund
Stephanie Robinson Foundation
Transplant Buddies
Agency for Healthcare Research and Quality (AHRQ)
Association of Organ Procurement Organizations (AOPO)
HealthCareCoach.com
Kenneth B. Schwartz Center
Medical Billing Advocates of America
Medicare Rights Center
Patient Advocate Foundation
Patient Services Incorporated (PSI)
FindaCaregiver.com
Kenneth B. Schwartz Center
National Alliance for Caregiving
National Family Caregivers Association
Rosalynn Carter Institute for Caregiving
Able Trust (FL)
American Kidney Fund
Andre Sobel River of Life Foundation
Caring Voice Coalition
Chronic Disease Fund
Dispensary of Hope
Georgia Transplant Foundation (GA)
Healthwell Foundation
Heroes for Children - Texas
Kidney Drug Coverage
Managed RX Plans
ModestNeeds.Org
My Friends Care Cancer Fund
National Foundation of Dentistry for the Handicapped (NFDH)
National Living Donor Assistance Center
Nielsen Organ Transplant Foundation - Florida
Patient Access Network Foundation
Patient Services Incorporated
RxHope
SAMFund for Young Adult Survivors of Cancer
Smart Medical Consumer
TIGER Transplant Fund
Transplant Foundation, Inc.
UnitedHealthcare Children's Foundation
Centers for Independent Living
Hope Lodges
Joe's House
National Association of Hospital Hospitality Houses (NAHHH)
Ronald McDonald House Program
American Association of Tissue Banks (AATB)
American Board for Transplant Certification (ABTC)
American Heart Association
American Kidney Fund
American Liver Foundation
American Lung Association
American Society for Transplant Surgeons (ASTS)
Association of Organ Procurement Organizations (AOPO)
Bone Marrow and Cord Blood Donation and Transplantation
Bone Marrow Foundation
Decision: Donation
Donate Life America
Georgia Transplant Foundation (GA)
Gift of a Lifetime
Inspire
International Institute for the Advancement of Medicine (IIAM)
International Pediatric Transplant Association (IPTA)
International Society for Heart and Lung Transplantation (ISHLT)
International Society for Organ Preservation (ISOP)
James Redford Institute for Transplant Awareness (JRI)
LifeLink Foundation
Mason Transplant Guest House (GA)
MatchingDonors.com
NATCO: The Organization for Transplant Professionals
National Bone Marrow Transplant Link
National Heart, Lung and Blood Institute
National Kidney Foundation
National Living Donor Assistance Center
National Marrow Donor Program
National Minority Organ Tissue Transplant Education Program
Nicholas Green Foundation
Organ Procurement and Transplantation Network
OrganDonor.Gov
Paired Donation Network
Scientific Registry of Transplant Recipients
Second Wind Lung Transplant Association, Inc.
TIGER Transplant Fund
Transplant Buddies
Transplant Connections
Transplant Experience
Transplant Foundation, Inc.
Transplant Living
Transplant News
Transplant Recipients International Organization, Inc. (TRIO)
Transplant Speakers International, Inc.
Transplants for Children
TransWeb
United Network for Organ Sharing (UNOS)
Air Care Alliance
Air Charity Network
Air Compassion America
CAIR Flight, Inc.
Commission on Accrediattion of Medical Transport Systems
Corporate Angel Network
Grace Flight of America
Med Flight Air Ambulance
MedFlight
Mercy Flight Central
Mercy Medical Airlift
Miracle Flights For Kids
National Patient Travel Center
Operation Liftoff
Pilots for Christ International, Inc.
Regional Transportation Services
AirLift Hope
Serving Arkansas, Louisiana, North Carolina, and Tennessee.
www.airlifthope.org
Ambulimo
Serving the Greater Philadelphia Region.
Angel Flight
Serving Georgia, Alabama, Mississippi, Tennessee, North Carolina, and South Carolina.
Angel Flight East
Serves 22 states on the east coast.
Angel Flight Mid-Atlantic
Serving the District of Columbia, Delaware, Kentucky, Maryland, Michigan, Ohio, Pennsylvania
Angel Flight Northeast
Serving Connecticut, Maine, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, and Vermont.
Angel Flight South Central
Serving Texas, Oklahoma, Louisiana, Arkansas and New Mexico.
Angel Flight Southeast
Serving Florida.
Angel Flight West
Serving Alaska, Arizona, California, Colorado, Hawaii, Idaho, Montana, New Mexico, Nevada, Oregon, Washington, Wyoming, and Utah.
Boston MedFlight
Serving Massachusetts.
CALSTAR
Serving Northern California.
Children’s Flight of Hope, Inc.
Serving North Carolina and surrounding states.
Flights For Life, Inc.
Serving Arizona and surrounding states.
GivingFlite, Inc.
Serving Alabama.
His Wings Aviation Ministries
Serving Pennsylvania.
Hope Flight Foundation, Inc.
Serving California, Nevada, and Oregon.
Houston Ground Angels and Pilots
Serving Texas.
Kids Wings
Serving Michigan.
LifeLine Pilots
Serving the Midwest.
MedFlight of Indiana, Inc.
Serving Indiana.
Mercy Flight Southeast
Serving Florida, Georgia, Alabama, South Carolina, and Mississippi.
Midwest Medflight
Serving Michigan.
Northwoods Airlifeline
Serving Michigan and Wisconsin.
Wings of Mercy
Serving Michigan, Ohio, Indiana, Illinois, and Wisconsin.
Wings of Mercy, Minnesota Inc.
Serving Minnesota.
Meg Dvorak
Giving Hope:
“Hope is not always easy to come by when you have a child who needs an organ transplant. There are sources of hope that bring comfort and strength during these times … and COTA was our source of hope. COTA’s team rallied our friends, family and community together to support and encourage us during every step of Cason’s transplant journey.”
B.G. and Tricia Blakely
