After another horrible scare, WE ARE OFFICIALLY LISTED!!!   Tuesday night Jason witnessed something no parent should ever have to see. He was at Abel's bedside when he stopped breathing....

On the morning of May 18th around 7:15 I attended cardiac rounds outside of Abel's room like we do every morning. I expected there to be no new...

After six very rocky days...WE ARE OFF ECMO!!! This is huge for Abel and his chance at a successful transplant. Thank you all so much for your continued...

If there is one thing we have learned through the adventures of Abel it is that everything can change in an instant.    Early Thursday morning Abel's arm started twitching...

After sixteen days in the hospital, we finally have a plan. The doctors have been going back and forth on how to approach Abel's failing heart. When we...

The surgeons decided overnight that they want to fix the leaky valve so we can get Abel in a stable place rather than watch, wait and worry in...

Jason and I came to the hospital today with no other expectations than another exhausting day in the cardiac waiting room. We were shocked to hear that the...

Abel will be going back in for surgery tomorrow. He has a leaky valve that is sending blood to his lungs making it impossible to control his oxygen...

I find myself hesitating to update because I may be a little bit superstitious. Abel is doing so incredibly well and quite frankly, surprising everyone. He recovered quickly...

As many of you may know, we found out at 20 weeks into our pregnancy that our precious baby boy has a congenital heart disease called Hypoplastic Left...