Our Story
My name is Amanda. I was born March 29th, 1987. After countless tests over a three month period, I was diagnosed with Cystic Fibrosis (CF), which is a terminal illness. CF is a gene carried by both parents and both of my parents carried the same gene. I happened to get both of the genes from my parents. My mom had eight children and I am the second oldest, and...
Continue Reading »Updates
17 days post transplant
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17 days post transplant and I am home making meals again. Walking and keeping active. Over this last week I had to get nearly 2L of fluids drained.... Continue Reading »
How I’m doing 12 days post transplant
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Today is day 12 post double lung transplant. Two nights ago I had to come back to the ER because my sugar level was out of whack. When... Continue Reading »
I got new lungs
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I got my call October 5th at 406pm! Had the surgery October 6 around 6 on. I was off the ventilator 12 hours later. Slept all the next... Continue Reading »
Blog 7. OFFICIALLY on the lung transplant list ????
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Good evening! I finally got the news I am officially on the lung transplant list! Hearing the words "let's get you listed" was pretty awesome! Now it's just... Continue Reading »
Blog 6- the depression of not being with family is setting in
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I've been in AZ a months now. Days are long and boring. I have appointments I go to once maybe twice a week. That's the only interaction I... Continue Reading »
Blog 5- Exciting news!
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VERY exciting news I got today! I've been approved for AZ Medicaid! All I'm waiting on is for them to put me on Mercy. As that is who... Continue Reading »
Blog 4- mental health
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Today I had to redo my AZ Medicaid application over the phone. Hoping I get accepted this week! ???????????? As soon as I am, I'll be on the... Continue Reading »
Blog 3 – One day closer
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This morning I went to the DMV and got an AZ ID card. I was told I needed it. So, I got it. Even though I cancelled my... Continue Reading »
Blog 2. The excitement of getting my story out there
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Well, today I cancelled my Nevada Medicaid. My brother Will is helping me apply for Arizona Medicaid tonight when he gets off work. Hopefully it won't take long... Continue Reading »