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TIME TO CELEBRATE!

Annabelle has her new liver! 

Her transplant day was Thursday, August 10, 2017!

She is now back home!

 

 

 

 

 

 

 

 

With the cost of a transplant often exceeding $500,000, many transplant families are unable to shoulder the financial burden of such a procedure. The Children’s Organ Transplant Association (COTA) is a national charity dedicated to organizing and guiding communities in raising funds for transplant-related expenses. In High Point, volunteers are raising funds for COTA in honor of transplant patients like local infant, Annabelle Grace McKinney.

Annabelle is the daughter of Charity and Mike McKinney. Born in 2016, Annabelle was diagnosed with Propionic Acidemia. The doctors at Children’s Hospital of Pittsburgh in Pennsylvania have recommended a life-saving liver transplant. An estimated $50,000 is being raised by High Point volunteers.

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Featured Post

ANNABELLE'S STORY

Annabelle Grace McKinney was born on Tuesday, September 20, 2016. Wednesday in the hospital was wonderful and the pediatricians that checked her out said she was perfect and that they couldn't find anything wrong with her. On Thursday, right before we got discharged from the hospital, she started be...

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Updates

 

Goodbye 2017!

Wow, it's really been a while since I've sat down and written a detailed update.  This holiday season has come with so many bumps in the road that I haven't even had a chance to write a blog post. Continue Reading »

November 15, 2017 - BIG News!

Well as most of you know, all of Annabelle's liver numbers were lower last Friday which was a HUGE praise.  Her EBV also dropped slightly from 43,000 copies in the blood stream to 41,000 copies (it wasn't much of a drop but hey, it's better than Continue Reading »

November 9, 2017 - Biopsy Update

Most of you know that Annabelle had to have a liver biopsy done last Wednesday.  All of her liver numbers went up last week and her EBV also jumped from 18,000 copies to 43,000 copies (how much of the virus is in her bloodstream).  Even though her Continue Reading »

Wednesday, October 18, 2017 - Darn EBV

Hi friends!  Mike and I wanted to give a quick update on Annabelle's labs for this week.  Forunately, most of her liver numbers (AST, gGTP, and Bili) all continued to decrease with the exception of the ALT (it jumped from 58 to 64).  The doctors Continue Reading »

Sunday, October 15, 2017

This past week has definitely been more positive than the last.  Annabelle responded well to the increased predisone and her liver numbers went back down. This was huge because this minor rejection episode was able to be treated with medication Continue Reading »

Wednesday, October 4, 2017 - MORE Elevated Numbers

Happy Fall Everyone!  We wish we had better news to report but Annabelle's liver numbers all increased slightly this week.  The numbers didn't jump a lot but we are all concerned because they have trended upward the past few weeks.  Monday's Continue Reading »

Thursday, September 28, 2017 - Elevated Numbers

Hi everyone!  I'm sorry for our long-overdue update on Annabelle's post-transplant progress.  Overall, she's still doing really well.  All of her stiches came out on the 18th and that has definitely made it more comfortable for her to be on her Continue Reading »

Saturday, September 16, 2017 - Less Doctor Appointments!

This past week has been our most relaxing thus far and we've had much more time to spend together as a family.  Annabelle had bloodwork first thing Monday morning and had transplant clinic immediately afterwards.  The transplant team continues to Continue Reading »

Thursday, September 7, 2017 - Moving in the Right Direction

Hello friends! I can't believe it's already been almost a week since my last update!  We're settling in here at the Ronald McDonald House, and it's been very nice to be out of the hospital and all living together.  The place is starting to feel a Continue Reading »

Friday, September 1, 2017 - We're Home (at Least RMH Home)

Obviously, the big news of the week was that Annabelle got discharged from the hospital Wednesday afternoon!!  We are now all three living as a family in our Ronald McDonald House apartment. As exciting as this was it was also somewhat terrifying Continue Reading »

Tuesday, August 29, 2017 - "Going to the Zoo"

I'm sitting here in the quiet of our hospital room looking out at the beautiful skyline of the city.  Annabelle has gone to sleep and Mike is back at the apartment resting for the night.  As great as this hospital is we are so ready to be home (at Continue Reading »

Saturday, August 26, 2017 Rejection Update

Mike and I just wanted to share a quick Annabelle update in regards to her rejection.  Luckily, her liver numbers are trending down and not increasing.  They aren't trending down as fast as we'd like but at least we're moving in the right Continue Reading »

Thursday, August 24, 2017 - Mild Rejection

Well today we got the results of Annabelle's liver biopsy and the doctors have concluded that Annabelle has "mild rejection."  Although the word "rejection" sounds scary, it is very common in the first few months post-transplant. Luckily, since it Continue Reading »

Tuesday, August 22, 2017 - URGENT PRAYER REQUESTS

As most of you saw on Facebook, Annabelle had a very fun and exciting morning.  First, she had a visit from Rambo the therapy dog...she didn't know what to think of him since he was smaller than the other dogs she's been around.  Next, we got to Continue Reading »

Monday, August 21, 2017

I know, I know...we've done really bad updating lately.  Saturday was about the same as Friday and yesterday we were busy having a night out!  The Steelers game was very fun and a once in a lifetime opportunity for us!  We also enjoyed eating at Continue Reading »

We LOVE 7B!

I wanted to post a quick update so people won't worry, but there's not much new to report.  Today was another great day for Annabelle!  She's still tolerating her feeds well through the NJ tube, and the doctors are slowly increasing her rate by Continue Reading »

Movin' On Up (to 7B)!

As many of you already saw on Facebook, the big news of the day was that Annabelle got moved out of the PICU and up to the 7th floor (7B transplant plant recovery wing).  She did have some trouble overnight throwing up, but we realized that her Continue Reading »

How Many More Tests?!

What a day!! I know how blessed we are to be at such an amazing hospital and I do not want to take that for granted.  However, Mike and I are very drained from hospital life already.  If you've never had to live in the hospital there's just so Continue Reading »

Still in the PICU :(

Hello friends!  There isn't too much to update today as Annabelle is about the same as yesterday.  Her ammonia has remained steady in the 80's and 90's but her lactate continues to climb slowly.   The team thinks the rising lactate is just a Continue Reading »

Progress

Today has had it's ups and downs which is expected on the rollercoaster that is transplant. Continue Reading »

NG Tube Gone!

Today has been Annabelle's worst day post-surgery. She was in a lot of pain overnight leading to vomiting and pitiful cries.  This is, of course, hard on us as parents knowing that we cannot take the pain away.  The morphine is helping with the Continue Reading »

No Breathing Tube!

Well today's big excitement was obviously the fact that Annabelle was able to get extubated (aka pulling out her breathing tube).  After good bloodwork, a clear liver ultrasound, and a great cpap trial they were able to pull the plug on the Continue Reading »

Annabelle has a NEW Liver!

Wow!  What a wirlwind these past few days have been! Let me catch everyone up to speed with what has happened: Continue Reading »

ANNABELLE'S STORY

Annabelle Grace McKinney was born on Tuesday, September 20, 2016. Wednesday in the hospital was wonderful and the pediatricians that checked her out said she was perfect and that they couldn't find anything wrong with her. On Thursday, right before Continue Reading »

Annabelle - 7 Months and Counting

31 Photos

Pittsburgh Trip #2 and EEG Results

Hello friends!  It’s only been a little less than two weeks since I’ve updated, and I already feel like so much as happened these past two weeks!  I wanted to update more often, but time just doesn’t allow it with the many doctor’s Continue Reading »

Doctors, Doctors, and MORE Doctors

Wow, I’ve been really really bad about updates lately.  To say that life has been a little crazy would be an understatement.  Since my last post we had just returned from the hospital and Annabelle had not been eating well.  We had really hit a Continue Reading »

Settling in at Home

Wow it feels so great to be home!  We are hoping that this will be Annabelle’s last hospitalization before transplant but who knows!  We were able to get discharged from the hospital on Friday around 3:30pm, giving us plenty of time to get Continue Reading »

Praise God! 60 Ammonia!

Hello friends!  I’m so sorry for the late update; I had started typing a blog post last night then accidently lost it all and didn’t have the energy to retype it. Continue Reading »

The Time is Here!

Well friends, we've hit that point in time where the stress-free waiting period is over.  Annabelle is well now and she finishes up her last dose of her antibotic tonight.  It's scary to think that "the call" could be any day now OR several months Continue Reading »

Annabelle - The First Six Months

23 Photos

Strep Again

Thank you everyone for your patience.  We are so appreciative of all the texts and Facebook messages we've received from all of ya'll concerned about Annabelle. Continue Reading »

Ketones Again

Well folks, we've been here before... Continue Reading »

MMR Round Two!

Happy Memorial Day!  I hope you all took time to reflect on the real meaning of today as we honor those who have fallen so that we can all be free. Continue Reading »

Upcoming Prayer Requests

Hello everyone!  Welcome to our COTA website for Annabelle's updates!  As most of you know, Annabelle had strep throat last week.  She is recovering well and seems to be back to her normal self for the most part.  She lost a lot of strength but Continue Reading »

Annabelle - The Beginning

14 Photos