Our Story
Our son, Benjamin Matthew, was born on 8/31/2021. We were only able to hold him for a few minutes before he was whisked away to the NICU, and ultimately the Pediatric Cardiac ICU (PCICU). It would be several hours before we could see him, and several days before we could even hold him. Prior to his birth, Benjamin was diagnosed with a hypoplastic right heart. This means that the lower...
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Go, Benjo, Go!
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Sometimes I tell people Benjamin's story, and I can't quite believe it myself. I haven't yet read back through these COTA updates or the Facebook updates, but I... Continue Reading »
H-O-M-E
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We have been HOME for just over 1.5 months! No, I can't even believe it. Benjamin is thriving. At his checkup last month, he was 23 pounds. And... Continue Reading »
262 Days Away
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On August 15, 2021, we relocated from our new home in Tallahassee to my parents' lake house in Interlachen (45 minutes from Shands) On 8/31, I had a... Continue Reading »
Pre and post
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7 Days Post Op
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Monday, 3/14, started out just like any other day - my mom and I met at the hospital so she could see Benjamin. Shortly after we arrived in... Continue Reading »
Another Month Already?!
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Since my last post, Benjamin has mostly been behaving himself. Sort of. He hid the fact that he does indeed have core/head control, and his physical therapist blew... Continue Reading »
Quick Recap
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Whew. January has come and gone, and now we're well into February. What a whirlwind the last few weeks have been. Here are the highlights: 1. Benjamin had... Continue Reading »
Covid-19
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Saturday, January 1 dawned wrought with the promise of a new year. As January 1s tend to do. Marjorie was still with my parents in Jacksonville, and Matthew... Continue Reading »