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Latest Updates

Our Little Warriors NORMAL Immune System! On Everett's recent visit to Duke at the start of May, we learned that his immune system has achieved NORMAL levels! Read...

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Past Fundraisers

The Team Everett Yard Sale 2016 was a great success!!! We received an enormous number of donations for our 2016 Team Everett Yard Sale this past Saturday, October 22nd, at Christ...

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Day 715 – Bus Time

The special education bus service which takes Everett (and big sisters) to school and brings Everett home officially began today! Despite the fact that Everett had never even...

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Day 713 – First Day of PreK!

Everett had a great first day of PreK! He is enrolled in an inclusive half-day program for 3 year olds at our local primary school...which means the Big...

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Day 708 – Successful Surgery!

UPDATE: Surgery went well and they successfully removed both the line from his ventricle and the port device from his chest! Additionally, Everett has been so healthy lately...

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Day 707 – Unexpected Surgery

Everett and Daddy returned to Sinai for his monthly check-up only to discover his port stopped working. After a dye-test fluoroscopy and echocardiogram, it appears the line has...

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HAPPY 3RD BIRTHDAY, EVERETT!!!

Today, Everett celebrated his third birthday surrounded by more than 80 loving family and friends. We were thrilled that so many supportive people were in attendance for his...

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Family Roadtrip!

Everett (and family) thoroughly enjoyed our first family vacation! It was so wonderful to be able to introduce Everett to family in Cape Cod, Dracut and Leicester, Massachusetts!...

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Day 690 – Therapy Champ

Big guy powered through multiple therapy sessions today like a champ. For the first time in months, he was playing with playdough without gagging! And no tears, just...

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