Day 116 - Grumpy Little Warrior

Today is the first day the boys have not needed to visit the hospital in weeks, but our grumpy little bear has been inconsolable since about 3am this morning. It's such a challenge when your child cannot understand why they are uncomfortable, and they are unable to communicate with you what might help. We are very hopeful to get through this frustrating phase and weaned off steroids soon!


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