Day 354 - Deflating Mr. Stay Puft

For the past few weeks, we have been weaning a steroid used to protect Everett's gut from Graft vs Host Disease (GVH) and to prevent vomiting. So far, the weaning was going well, but unfortunately, our little guy has broken out in a GVH rash. We are very, very hopeful that we can manage the reaction with topical creams so we don't have to resume the steroid dose again. The steroid dose works well against GVH, but side effects include suppressing Everett's already poor immune system, decreasing bone density, and making Everett look like the Stay Puft Marshmallow Man, so we are really hopeful we can get Everett off of it soon. Thank you for your continued prayers and support!


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