Day 392 - Long Sinai Visit
It was a long visit today at Sinai Hospital so Everett could receive his biweekly infusion of ecluzimab and IVIG to boost his weak immune system.
Overall, life is great these days! Everett has weaned completely off of magnesium, a blood pressure medication, and a steroid that prevented GVHD in his gut. At this time, he has a very mild GVHD rash on his belly, which is being managed with creams. If things continue to improve, we hope to begin weaning hydrocortisone soon and eventually another immune suppressant.
Each day, we are noticing wonderful improvements in his strength, stability, and social skills. Thank you for your continued prayers and support!