Day 420 - Back in Business!

Everett and Daddy spent the entire day (12 hours) in the Children's Hospital at Sinai for the weekly clinic checkup and scheduled infusions of ecluzimab and IVIG.

Thankfully, labs looked stable today, the GVHD rash is gone, and vomiting has stopped. We have been given the OK to resume reducing steroids (much more slowly this time) and hope our little guy can tolerate the wean over the next few weeks without any complications. Once the steroids are weaned successfully, his immune function should improve and his medical team will begin making decisions about reducing other medications, which we are really hopeful to be able to do!

Thank you so much for your continued prayers and support!







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