Day 580 - Strong and Spunky

Everett powered through multiple therapy sessions today. We are thrilled our little guy is getting to be so strong and spunky!

Next week, we will return to Duke for a follow-up. This visit will examine lung and heart function as well as endocrine and neuro-ophthalmology appts. We are especially excited to meet with his transplant team to discuss immune function, the status of Everett's red blood cell bursting issues, and next steps. 

We are really looking forward to seeing our second family again and showing off how much Everett has grown and changed since they last snuggled him in October. But most importantly, we are hopeful to hear positive results! Thank you for your continued prayers and support!

 

 

 

 

 

 

 

 

 

 

 


 

 

 

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