Our Story

As many of you know Iain was diagnosed with Idiopathic Pulmonary Hypertension in 2004 after a regular visit to his pediatrician in Boulder, Jill Kamon. She had identified a loud second heart sound and concerned she referred him to Children's Hospital Colorado where he was diagnosed and ultimately treated by Dr. Ivy's team. Many children do not have that early diagnosis and we cannot thank enough Jill Kamon, Dr. Ivy,...

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Updates

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Iain

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One Year Check-Up

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The one year hurdle has been cleared.  No rejection means he has better than average chances of avoiding chronic rejection for a while.   His lungs are perhaps not... Continue Reading »

A Year Today

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What a year it has been.  So many life and death events affecting our friends and family from all over the world in just a year.  On January... Continue Reading »

Nine Months On and Zero Rejection

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The further we get from the date of transplant the less likely Iain will suffer from acute rejection.  We just got back from St. Louis where Iain underwent... Continue Reading »

Iain is still Rejecting Rejection

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Yes, we are happy to report Iain has thus far avoided acute rejection.  On the whole his results are looking decent. I have to admit on Monday evening... Continue Reading »

Sizzling St. Louis

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Iain and I are back in St. Louis for his 6 month bronch and biopsy.  He has done very well in the two months since getting back to... Continue Reading »

Home and Who to Thank First?

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Iain and I arrived home last Saturday afternoon to a beautifully redecorated house thanks to our wonderful friend Doug Ryder.  (Just do not tell him I said that... Continue Reading »