Super Saturday

Iain had a great day.  He managed a trip to the rooftop garden on floor 8 with his entourage.  He slept last night.  And best of all his brother came in from California.  To those who may be wondering, Simon our 11 year old has been lovingly welcomed into the bosom of the Prakash family (my brother’s family) in Los Gatos and to whom we are very grateful.  Although there were competing interests in Boulder to keep him there from my sister to my parents and friends and the extended High Peaks family, we thought that being able to go to school with his cousin and be near to Olivia who is 10 minutes away in college would be optimal particularly if things became tenuous with Iain (which of course they did but happily not now).  Iain smiled in a completely different way when he was with Simon, it was beautiful. Although Iain is still not eating even with Dr. Sandeep trying to tempt him with chocolate ice-cream, we brought a nice cake to celebrate John’s birthday to celebrate with the night CIUC staff.  For those wondering he still has the trache and has pressure support so cannot talk which is naturally frustrating when his mother is too dimwitted to understand his hand gestures.  His writing has improved tenfold even from yesterday so communication is an issue but getting a bit better.

 

Leave a Reply

Your email address will not be published. Required fields are marked *