This Thursday will be good
Iain is having his 2 month bronch to test for rejection as protocol. He came off ICU service yesterday which is great. On Monday he got a new trach which should help with the "speaking" valve, although it has not been tested yet. Before he had complained that it was suffocating him and everyone reassured him that no he was not and really it was all in his head. Finally one of the respiratory techs noticed the amount of pressure building up when she changed him from the ventilator to the trach collar. So indeed he probably did feel like he was suffocating (though not actually). Very big oops.
Iain had a great weekend with his Uncle Simon, cousin Sophia from Los Gatos, and his friends Colin, Mason, Dean, and David and my friend Lisa here from Boulder. I think it got him out of being the "very sick kid" and back to being a teenage boy. The staff were great coming in to meet his squad and getting us a conference room so we could be more comfortable. I will post some photos in the photo album of this blog. If they are not there immediatly it is because I got distracted.