As you know Iain has had a particularly rough ride through the transplant journey. Just as we thought he had burst through to the other side, Iain got hit with another case of ICU delirium (though why we would tempt fate like that, I do not know). Last week’s neuroleptic malignancy syndrome demonstrated that he cannot take the normal drug regime to alleviate it. To remind you, one of his symptoms of that syndrome was a fever of 107.42. The funny thing was when his temperature was climbing (over 105) one of his doctors reassured me that the brain does not begin to “melt” until about 108. I think I might remind her of that conversation when I see her.

So today Iain is a little calmer after a rough afternoon/evening yesterday and two nights of no sleep. He did tolerate the tracheostomy and when he is lucid he tries so hard at his PT and OT. Carol, his physical therapist is here now. Everyone is amazed at his resiliance and completely dismayed and upset for him when he has these setbacks. There are many doctors and nurses, even if they do not have him in their care at a given moment, come around to find out how he is doing. They are a lovely bunch here in St. Louis Childrens Hospital.