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WHAT WOULD YOU DO...

...if  you found out a few days after giving birth to your child that they had a devastating disease that was incurable? 

...if you learned that this disease, Cystic Fibrosis, would slowly wreak havoc on her entire body and eventually ravage her lungs to a point that they would no longer function?

...if you discovered that as her years progressed, so did the amount of medication and drugs, therapy, hospital visits, tears, frustration and fear increase as well?

...if, as her years progressed, she did not accept the constraints of CF, deciding instead to embrace life and school and set an impossible goal of being accepted into an IVY league university?


...if two weeks after being accepted and attending Harvard, her dream was crushed as her disease forced her away from the campus of the university and back into the campus confines of Children’s Hospital for months?

...if you found out that her lungs had gone from bad to worse and that the only hope for a better life would be to replace both her lungs, literally providing a breath of fresh air?

...if you found out that the operation, relocation expenses (most likely Cleveland) for 3-4 months, and recovery would cost well over $1 million dollars and that you would be responsible for at least $100,000 of those expenses?

WHAT CAN YOU DO?

I have set up this fundraising page for COTA in honor of Julia. 100% of your donations through this COTA website are available for a lifetime of transplant-related expenses. They need our help.

The Children's Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support. COTA is the nation’s only fundraising organization solely dedicated to raising life-saving dollars in honor of transplant-needy children and young adults. 100% of each contribution made to COTA in honor of our patients helps meet transplant-related expenses. COTA’s services are free to our families, and gifts to COTA are tax deductible to the fullest extent of the law.

Comments

  • The Van Cleef/Caffrey Family

    Best wishes and prayers to Julia and family.

  • Janet Smillie

    Hi Julia, Forestdale School is thinking of you! We are getting involved with several upcoming events. Also, Anna has been sending me links to fundraisers for you and keeps me updated on your page. I know she thinks of you often. Stay strong. You and your family is always in our hearts! ??

  • Judith Barrigas

    Julia and family: We are praying for you. Your neighbors: The Barrigas Family

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