Hectic Schedules

Life has been hectic with all the extra appointments and infusions. The results are still up and down. The good news is that his kidney function is good and that is what we care about most right now besides heart function. The BK virus is very stubborn & we are still fighting with insurance. ???? He has been doing better at the appointments but he is still wiped out after treatments. We had our first PICC line scare as his bandage came loose and it was exposed. We changed the bandages for the first time on our own & are praying no infection starts. ???????? Noah will start school tomorrow and then the real chaotic schedules begin. Thank you for your continued thoughts and prayers.

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