Long Infusion and Insurance Refusal

Need prayers!! Noah’s infusion was a very long day but the first results showed some small improvements. He has sensory issues to taking off his bandages resulted in a behavior alert being called! ????????‍??This is when over the whole hospital monitor system it is announced the team in our room needs help with an unruly patient. They are used to Noah’s behavior issues in the heart center but not the infusion rooms yet. He clearly wore himself out. This brings hope only to be immediately squashed by insurance. They are refusing to cover the cost. We are in another battle and we are SO TIRED of fighting while fighting Noah’s actual health battles too. It’s so unfair???? I don’t understand why they keep doing this. ???????????????? Please pray for relief!????

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