Happy 4 month Birthday Porter!!!

Porter turned 4 months old today!!!!  He has had a good day and has slept most of the day. They have increased one of his medications which helps him fight withdraw from morphine which they are trying to completely wean.  Porter fought a fever today but we’re thinking it was from the little bit of change in his morphine since it went away with some Tylenol. 

We had a family meeting with Porter’s docs yesterday and they feel comfortable that he is well enough to be transported to the cath lab for a heart cath to check his pressures and be even more prepared for transplant when a heart becomes available.   They are going to make an exception to their “no kid under 12 visitor” rule next week and let Oliver come up to see Porter.  He has been asking about him lately and wanting to come to the hospital with us to see him.

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