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Our Story

Hi! Thanks for taking a moment to check out our website. To start, I would like to introduce you to our family. I am Emily, my husband is Zack, we have been married just over 4 years and in January 2017 we welcomed our beautiful daughter, Rilynn. We wanted to share just how appreciative we are for each and every prayer, financial gift, or word of encouragement throughout Rilynn's journey with ARPKD and most recent diagnosis of Heptoblastoma. Rilynn was born with auto recessive polycystic kidney disease (ARPKD). She had both her kidneys removed at a week old and has spent all of her life on diaylsis, 12 hours a day currently. Once she met weight goals and we found an amazing living kidney donor, Apiffany, we had a date set for her kidney transplant. Only a few short weeks before they were to undergo the surgery, we found some cysts on Rilynn's liver. A biopsy confirmed they were cancerous. Rilynn is now undergoing chemotherapy and has been listed for a liver transplant as well. She has...

Updates

 

Fall 2018

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Rilynn

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Surgery Nightmare

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Updates on Rilynn

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Our Story

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