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Our Story

Hi! Thanks for taking a moment to check out our website. To start, I would like to introduce you to our family. I am Emily, my husband is Zack, we have been married just over 3 years and in January 2017 we welcomed our beautiful daughter, Rilynn. We wanted to share just how appreciative we are for each and every prayer, financial gift, or word of encouragement throughout Rilynn's journey with ARPKD. Transplant is a bittersweet step, as comfortable as we have become with dialysis, Rilynn deserves to live life to the fullest! In the next few months we will begin the process to Rilynn's first kidney transplant. Most people do not realize that there is no cure to ARPKD (Yet!). A kidney transplant is a treatment option that typically lasts 10 to 15 years until she would either have to return to dialysis or recieve another transplant. 100% of funds raised for COTA in honor of Rilynn assist with transplant-related expenses and COTA provides support to its families and patients for a LIFETIME....

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Rilynn

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Surgery Nightmare

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Updates on Rilynn

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Our Story

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