Rosie is our vibrant, loving, independent, strong-willed, funny, and amazing four-year-old. Rosie was diagnosed with Maple Syrup Urine Disease when she was four days old. She went in a serious metabolic crisis when she was seven days old. We almost lost her when she was 10 days old. That day we promised to do everything we could to get her the best care possible.
Rosie was cured of her MSUD when she received a living donor liver transplant on 10/2/14. She was nine months old. There were immediate complications. These complications caused her to endure over two years of drains, procedures, admissions, and additional medications. Our family relocated in June 2015, from Thousand Oaks, CA to Pittsburgh, PA, so Rosie could be close to her medical team. In October of 2016, everyone knew it was time to give Rosie a second chance. Her liver is failing. She is going to get a new liver.
On December 15, 2016, Rosie was listed for a new liver. We are hopeful that this new liver will help Rosie overcome the complications she faced with her first transplant. However, there are no guarantees.
Rosie’s medical expenses are forever. She will be on medication for life. Co-pays, driving to and from the hospital, parking, lost wages, medical supplies, and so much more. We appreciate you supporting Rosie. We ask that you keep her in your prayers. Spread awareness on organ donations and register to be an organ donor. Rare diseases are not rare. We hope we can educate and inspire.
The Children's Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support. COTA is the nation’s only fundraising organization solely dedicated to raising life-saving dollars in honor of transplant-needy children and young adults. 100% of each contribution made to COTA in honor of our patients helps meet transplant-related expenses. COTA’s services are free to our families, and gifts to COTA are tax deductible to the fullest extent of the law.