I update www.cfhappens.com with all my health updates and I totally forget to update here. I will get better at updating here!! Here is the last 6 months...

My regular CF doctor wanted me to be seen by my transplant hospital (Barnes-Jewish in St. Louis, MO) because I've had 2 hospital admissions this year and my...

I had been having back lung pain for 2 weeks as of April 26th so I called my nurse to ask for a chest xray to make sure...

I haven't been feeling good since the 1st. My husband also caught whatever it was but got over it pretty quickly. I however still don't feel well. I...

The fundraiser was a success! Thank you to everyone that was able to come out and celebrate my 40th birthday. Unfortunately we came home and we're both sick....

I had CF Clinic yesterday.  I'm holding steady lung function wise at 37%.  I did start a new CF med called Trikafta.  It was just FDA approved in...

Today was CF clinic day.  It was my normal 3 month check up that turned into a hospital/IV follow up.  It seems to happen that way most of...

I got home around noon today from the hospital which is record time for a release.  It helped that I didn’t have to wait for my IV antibiotics...

I have left a message with my nurse to say I would like to be admitted tomorrow.  Not that I would "like" to because who are we kidding,...

Today I had a check up since I'm not feeling better after 6 days of IV antibiotics.  My lung function was down again to .88L/31% FEV1.  I started...