Our Story
Stephanie is a 46-year-old, mother of two and grandmother of two wonderful grandsons ages 2 and 4 years old, living with cystic fibrosis — a life-threatening chronic disease that limits the ability to breathe. Because of this medical condition, it’s almost impossible to live a normal life. Each day is a struggle and with as the years go by new hurdles are jumped. Her 28-year-old daughter, Britany, and 16-year-old, Stephen...
Continue Reading »Updates
Day #5 of Trikafta
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I had my Cleveland pre-transplant followup appointment. It went great! My lung function increased from 37% to 41%. Not only that but my 6-minute walk resulted in an... Continue Reading »
Long needed blog beginnings
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I keep reminding myself that I want to start blogging. I have had so many good and bad experiences or hurdles in my life dealing with my CF.... Continue Reading »
Lungs for Steph
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Family of Steph
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CF Walks and Fundraisers
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