Blog

Ballard Annex Oyster House Fundraiser for the Month of April

During the month of April, Executive Chef Jaymi Stahnke will feature “Superhero Oysters” on the menu. The proceeds from Superhero Oysters will be donated to COTA for Team Alex S.

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SEVERAL SWAB EVENTS COMING UP!

Register online at https://join.bethematch.org/loveforalex

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Thank you Tide Tables Restaurant, especially Bob and Gwen for your donation!

Each year, customers from all over America visit Tide Tables Restaurant in Cortez/Bradenton, Florida and post dollar bills with their name, state or slogan all over the restaurant walls. The quaint little dock-side, family friendly restaurant is Continue Reading »

MEDIA COVERAGE: Bradenton Herald publishes two articles about Alex and IPEX

The Bradenton Herald recently published two articles about Alex and IPEX. We are getting some great attention for Alex and IPEX! Check them out at the links below!

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MEDIA COVERAGE: Article on The Belleville News-Democrat

The Belleville News Democrat recently did a very nice interview with Brandon, Alex and Sherry, which includes a video. Check it out at the link below!

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FUNDRAISER: Lemonade stand in St. Peters MO

Please visit Alex's friends' lemonade stand on Saturday July 22nd, from 1-4PM. Please come and support the kids in their efforts to help their friend Alex!

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UPDATE: Pictures from Donor Awareness and Testing Event at Caddy's on the Point

Held Their 1st Annual July 4 Celebration and Allowed Us to Hold a “Donor Awareness and Testing Event” and a 50/50 drawing. We signed up 20 potential donors and raised $600 from 50/50 sales and donations. What an awesome Crowd!

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Media Coverage

December 2017: Sarasota Post:

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Centene Walk for Wishes 2017 sponsored by "Make a Wish"

On April 15, 2017, Alex and family attended the Centene Walk for Wishes 2017 at Forest Park sponsored by "Make A Wish" the largest event of its kind in the country. Proceeds from the event help fulfill the wishes of children battling Continue Reading »

Elvis Night Fundraiser

We would like to thank both VFW Post 10141, Bradenton FL and Post Auxiliary members and Bill Lindsey (Elvis) for a great night!

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What is IPEX?

IPEX is a rare genetic auto-immune disorder. So rare that most doctors know little about it. Medically speaking; IPEX is caused by a mutation of the FOXP3 gene and remains genetically specific to boys. With so little information out on this disease Continue Reading »

How You Can Help

If you could help make a miracle, would you?

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