Sample Image

Our Story

Accepting memorial contributions.

Massachusetts native Amy S. was diagnosed with Cystic Fibrosis at the age of 11. Cystic Fibrosis (CF) is a genetic disease that causes progressive lung damage, persistent infections and eventually respiratory failure. Though she has been frequently hospitalized throughout her life since her diagnosis, Amy dedicated herself to her education, and to helping others in her career after completing her degrees.

Amy graduated from Haverhill High School with high honors in 2004, then attended Loyola University in Maryland, earning a dual degree in Psychology and Writing in 2008.  In 2010 she began studying for an advanced degree at the University of Massachusetts and earned a Masters in Counseling in 2012. During her entire career, Amy has worked to support children and adolescents in the community.  She began her career working with adoptive and foster children, and currently with young adults with major mental illness. Her goals have been to ensure c...

Featured Post

Update from Sarah

Good News: Amy spoke a little today. She said hello, and she recognized me. She is still not putting together full sentences, and her mind seems to get lost again quickly, but I'm thankful it's a step in the right direction. Her doctors are also beginning to rule out meningitis as test results come...

Continue Reading »



Update from Sarah

Good News: Amy spoke a little today. She said hello, and she recognized me. She is still not putting together full sentences, and her mind seems to get lost again quickly, but I'm thankful it's a step in the right direction. Her doctors are also Continue Reading »

Update on Amy's condition:

The Transplant Infectious Disease doctors saw Amy today to try to narrow down what caused Amy's seizures and swelling in her brain. They said they didn't see any obvious signs of inflammation in her cerebrospinal fluid (from the lumbar puncture), Continue Reading »

Updates from Sarah:

5/27/2019Amy had 2 seizures this morning. She’s stable but not conscious and has been moved to the ICU. As some of you know, she recently had surgery to place a GJ-tube in her abdomen to help supplement her nutrition and help her put on weight. Continue Reading »

Thanksgiving eve

Yesterday Amy woke up with a fever, chills, chest pain, low 02 levels, and vomiting. A quick ambulance ride later we arrived at MGH, where she was quickly taken care of by their lovely ED team. She recieved a bronchoscopy this morning, and her stats Continue Reading »

Announcement Time!

We are overjoyed to share that Team Amy S has now raised over $30,000 for COTA in honor of the truly wonderful Amy. Since we got together this past Spring, it has been a tough road filled with tears, scary discussions with medical staff, late or Continue Reading »

From the woman herself:

“Just a quick hello from a very grateful#DoubleLungTransplant survivor, I can't thank everyone enough for all the kinds of support I've received. Special thank you to those helping thru, either giving or fundraising. Continue Reading »

Pizza Night

Tonight is pizza night! Come to Flatbread Somerville 5-10:30PM and make some dough for COTA in honor of Amy! A portion of the proceeds from all pizza bought tonight will go to COTA in honor of Amy. COTA has been massively helpful in easing some of Continue Reading »

Amy update!

Amy update! We went out to the MGH Healing Garden today and got some amazing views of the Charles River. She still has a feeding tube, but is able to eat some food on her own, which means she is getting closer and closer to going HOME! She’s able Continue Reading »

Update on Amy:

She has slowly been getting stronger, and actually got to walk around the hospital unit today, but she is still very underweight. She has been struggling with some severe nausea for the last few days, and the cause still isn't clear. Continue Reading »

Welcome Back – from Crystal

   I’ve been putting off writing this entry, because I have so many emotions about the last couple of weeks, as do all of Amy’s family and friends.  Still, I want to bring blog readers up to speed. First, let’s start with some good Continue Reading »

Independence Day

Amy’s 4th of July is being spent in the Respiratory Acute Care Unit here at MGH. Today, she’s celebrating her independence from not being able to talk. I had a full blown conversation with her for the first time in over a month and it was so Continue Reading »

Thank you!

Thank you to Wicked Local -Somerville for a mention on your site of our next great fundraiser for COTA - Level Up for Lungs. Continue Reading »

Another update from Sarah

Update from Amy's sister Sarah: Amy suffered three grand mal seizures today. Doctors are not sure yet what is causing them, but they're doing a lot of testing. It's hard to see her continue to suffer, she's been through so much. But hopefully this Continue Reading »

Level Up for Lungs PC!

13 Photos

Moved out of the ICU

Great update from Amy’s sister Sarah: Amy is being moved out of ICU to a rehab floor. She is breathing on her own now without the use of a vent! This is a wonderful step towards recovery.  Continue Reading »

Amy update

Amy update from Crystal: Amy’s still improving every day, but it’s a very slow process, with a lot of risks along the way. I had to suit up again tonight to go in her room, because she’s receiving meds via nebulizer that wouldn’t be good for Continue Reading »

They got her lungs!

Amy is out of surgery, which was apparently tough because of how infected and inflamed her old lungs were, and she needed several blood transfusions during surgery. Her new lungs kicked in right away, so the doctors are confident she will be okay, Continue Reading »

Many Thanks

This has been a week of some intense highs and lows. As you may have read on Facebook, Amy will likely stay in a medically-induced coma until new lungs are found. Even slight movements are now causing hiccups in the ECMO machine that is keeping her Continue Reading »

6/9 to 6/13

The last couple of days have been especially difficult. On Saturday, it seemed like Amy was slowly improving day by day. On Sunday, she started coughing up blood, and while waiting to be brought down to the OR to stop the bleeding, Amy's heart Continue Reading »

Some pictures of Amy

10 Photos

A scary day

From Sarah: Continue Reading »

A quick update

Amy is still very sedated, but is improving daily. Physical therapy is having her stand up, but it takes a whole team of people to move her around because of the ECMO machine and all of the IV lines. She is also able to be moved to a chair in the Continue Reading »

Updates on Amy

It’s been a hard couple of weeks for Amy. She was put into a medically induced coma for a week but there was no improvement in the condition of her lungs. At the end of May she was moved into the ICU that is connected to her transplant team, and Continue Reading »