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Our Story

Massachusetts native Amy S. was diagnosed with Cystic Fibrosis at the age of 11. Cystic Fibrosis (CF) is a genetic disease that causes progressive lung damage, persistent infections and eventually respiratory failure. Though she has been frequently hospitalized throughout her life since her diagnosis, Amy dedicated herself to her education, and to helping others in her career after completing her degrees.

Amy graduated from Haverhill High School with high honors in 2004, then attended Loyola University in Maryland, earning a dual degree in Psychology and Writing in 2008.  In 2010 she began studying for an advanced degree at the University of Massachusetts and earned a Masters in Counseling in 2012. During her entire career, Amy has worked to support children and adolescents in the community.  She began her career working with adoptive and foster children, and currently with young adults with major mental illness. Her goals have been to ensure children have a future and are safe. She is an extremely intelligent and caring person, tirelessly working to help others. Now she requires our help.

At 32-years-old, Amy is in need of a double lung transplant due to the damage her lungs have sustained from her lifelong battle with CF. There is no cure for CF, but a lung transplant can extend a patient's life and improve their health once their lungs become so damaged that they can only function at or below 30% of normal. Amy’s lung/oxygen capacity is currently between 32%-40%, and due to the nature of CF, it will continue to decline.

The transplant process is invasive, physically demanding, and requires a minimum of six-months recovery time. After the surgery, Amy’s entire life will change:  she will have to begin taking heavy doses of immunosuppressants, as well as a multitude of other medications for the rest of her life. She will have more frequent doctor’s appointments and tests during the recovery period as well.

During that projected minimum of six-months recovery time, Amy will not be able to work, and in addition to her normal living expenses, she will have significant medical costs. These expenses would be significant without the burden of major illness, but as a single woman supporting herself, these financial challenges fall well beyond her present income. Her friends and family have partnered with COTA to help raise funds in Amy’s honor to help assist with transplant-related expenses.              

Please consider how you can help, and share our mission with others. Through your love and support we can all help Amy breathe just a little bit easier.

The Children's Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support. COTA is the nation’s only fundraising organization solely dedicated to raising life-saving dollars in honor of transplant-needy children and young adults. 100% of each contribution made to COTA in honor of our patients helps meet transplant-related expenses. COTA’s services are free to our families, and gifts to COTA are tax deductible to the fullest extent of the law.

Comments

  • Maggie Davenport

    I want to thank everyone for their kind Acts of giving on behalf of my daughter Amy it means more than I can say thank you especially the COTA team members

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