Danny is in the Race of his Life!!!!
His disease has reached the point in his life of needing a Double lung transplant. At the beginning of 2019, he was vetted at UNC Medical and has been officially listed for transplant. There are no more medications that can help him regain his pulmonary function at this time. This is a major undertaking, both medically and financially. In order to be listed, he and his mom have relocated to North Carolina, to await the call. An operation of this magnitude, including pre and post-transplant expenses, can range upwards of $1.4 Million dollars. Even though insurance policies should cover big portion of this cost.
We anticipate out of pocket cost to range upwards of $250,000.
We are starting our fundraising efforts with COTA now in order to be able to facilitate everything possible that Danny needs to continue his race through life.
As most of you know, it has been a little over 17 years since Danny was diagnosed with Cystic Fibrosis, a genetic disease affecting the lungs and digestive system. The disease causes abnormally thick mucus, which results in frequent life-threatening respiratory infections and continued hospitalizations. There is no reversal of the effects. He has been on constant IV antibiotics for the last 18 months and hospitalized several times. He’s had trouble keeping his weight up and continues to fight to keep his lung functions as best as they could be. He started to use oxygen in January due to the shortness of breath in going about his daily routine. Even with all the struggles, he still keeps his chin up and pushes through the adversity. He turned 18 last fall, is completing his senior year in High School and has aspirations to begin college in the fall.
From the moment he is listed, the average wait time is 3-4 months and post-transplant, Danny will have to be close to the medical center for at least the first 6 months. He plans to make Chapel Hill NC his home for a while. We ask you to please share this link with all your friends and family and Run with Danny through his journey. Every dollar gets us closer to our goal.
You can follow Danny on Facebook, Instagram and Twitter. Look up Running with Danny. #Lungs4Danny #DQsLungs
Help us Raise Awareness: Use our custom graphics and draft posts (located here) to show your support and encourage your social media friends and followers to help us in our fight to get #Lungs4Danny or #DQsLungs
Watch Dannys "Coach DQ" video ( watch this).
The Children's Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support. COTA is the nation’s only fundraising organization solely dedicated to raising life-saving dollars in honor of transplant-needy children and young adults. 100% of each contribution made to COTA in honor of our patients helps meet transplant-related expenses. COTA’s services are free to our families, and gifts to COTA are tax deductible to the fullest extent of the law.
We thank you for your support, both spiritually and financially through donations to COTA.
Please keep Danny, his family and his doctors in your daily prayers.