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Danny is in the Race of his Life!!!!

His disease has reached the point in his life of needing a Double lung transplant.  At the beginning of 2019, he was vetted at UNC Medical and has been officially listed for transplant.  There are no more medications that can help him regain his pulmonary function at this time.  This is a major undertaking, both medically and financially.  In order to be listed, he and his mom have relocated to North Carolina, to await the call.  An operation of this magnitude, including pre and post-transplant expenses, can range upwards of $1.4 Million dollars.  Even though insurance policies should cover big portion of this cost

We anticipate out of pocket cost to range upwards of $250,000.

We are starting our fundraising efforts with COTA now in order to be able to facilitate everything possible that Danny needs to continue his race through life.

As most of you know, it has been a little over 17 years since Danny was diagnosed with Cystic Fibrosis, a genetic disease affecting the lungs and digestive system. The disease causes abnormally thick mucus, which results in frequent life-threatening respiratory infections and continued hospitalizations. There is no reversal of the effects.  He has been on constant IV antibiotics for the last 18 months and hospitalized several times. He’s had trouble keeping his weight up and continues to fight to keep his lung functions as best as they could be.  He started to use oxygen in January due to the shortness of breath in going about his daily routine.  Even with all the struggles, he still keeps his chin up and pushes through the adversity.  He turned 18 last fall, is completing his senior year in High School and has aspirations to begin college in the fall. 

From the moment he is listed, the average wait time is 3-4 months and post-transplant, Danny will have to be close to the medical center for at least the first 6 months.  He plans to make Chapel Hill NC his home for a while.  We ask you to please share this link with all your friends and family and Run with Danny through his journey.  Every dollar gets us closer to our goal.

You can follow Danny on Facebook, Instagram and Twitter.  Look up Running with Danny.  #Lungs4Danny #DQsLungs

Help us Raise Awareness:  Use our custom graphics and draft posts (located here) to show your support and encourage your social media friends and followers to help us in our fight to get #Lungs4Danny or #DQsLungs

Watch Dannys "Coach DQ" video ( watch this). 

The Children's Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support. COTA is the nation’s only fundraising organization solely dedicated to raising life-saving dollars in honor of transplant-needy children and young adults. 100% of each contribution made to COTA in honor of our patients helps meet transplant-related expenses. COTA’s services are free to our families, and gifts to COTA are tax deductible to the fullest extent of the law.

We thank you for your support, both spiritually and financially through donations to COTA. 

Please keep Danny, his family and his doctors in your daily prayers.

 

 

Comments

  • Quesada Family

    My prayers are with you every step of the way. Will try to see if some of my friends can donate. Good luck !

  • Isabella Gonzalez

    Strongest boy I’ve had the pleasure of knowing since 1st grade ?????????? We’re all with you on this one Danny!

  • Ruiz family

    Hi Danny: Our prayers are with you. Stay strong! We have shared your page on facebook and have faith that you will get the lungs and financial support you need.

  • Vicky and Victor Andre Machin

    Praying for a STRONG RECOVERY Danny! You and your family are in our prayers! ????????

  • Leyla Cobiella

    Danny, our family is praying for you that you get the lungs you need and all the financials you need.

  • Alcantara Family

    Our prayers and love are with Danny and all of you. - all our love Ryan and Family.

  • Alexa Spinoso & family

    I've had the privilege of watching Danny grow into a wonderful young man over the past 17 years at the Great Strides events. My family prays that you receive your lungs and decades of good health to follow!

  • Adam Ruiz

    Praying for you in Philly!!

  • Roxana Romano & Family

    We're praying for you Danny!

  • Ed and Becki

    We are parents of a Belen grad and aunt to Columbus grad. We just moved to the Raleigh area from Miami. Anything we can do to help when you come up for wait and surgery e would be happy to. If you ask Rose Ortiz she will give you my contact. Many prayers!!!????????????????

  • Isabel Barandiaran

    Keep strong Danny, prayers coming your way and for your family !God will be with you and protecting you all the way so you can keep on running.

  • Patti Bebber

    My son was a CCHS graduate with CF. He had a liver and kidney transplant while at CCHS. We spent 4 years at Duke. Brother Kevin can give you my contact info. Would love to help you with anything

  • Beruvides Family

    Our Thoughts & Prayers are with Danny & his Family. Fight Hard, Fight Strong, Pray & Leave the rest in God's hands. #Adelante

  • Ceyda Buechele & Family

    Our prayers are with you Danny!!!!

  • Valeiras Family

    Prayers for your Danny and the whole family!

  • Vizcarra Family

    Prayers and donations are on the way!

  • Phil Bebber

    My Son Bobby went to CCHS and had CF. Multiple liver transplants and a kidney transplant. Was at Duke for over 3 years. If you need someone to talk to, Email me at Mrproduce1313@yahoo,com My mind.heart.Love to Danny.

  • FOLGUEIRA FAMILY

    Our prayers are with you! Danny keep fighting...DO NOT GIVE UP! Mike & Mari we are here for you.

  • Cristina and Deron Egerman

    We will pray for you and your family and will support you. We will do our best to spread the word and get your story out there. I am sure I can get some of my friends to donate and get your story out there. Good luck!

  • Rodolfo& Marlene Alvarez

    Our daily prayers are with The Quesada Family. God bless you Danny! #Adelante

  • Valerie Delgado

    Praying for you Danny. God is with you and everything will come out fine. ????????????????????????

  • Lissette Leonard

    Praying ???? for you Danny ????

  • Guixens Family

    Our prayers are with all of you. You have tremendous intercessors in heaven who are cheering you on. Adelante Danny!!

  • Cruz Family

    We are in constant prayer for you and the family. God is with you always. Lots of love and good energy going your way. There is no battle god give us that we can’t surpass. I know you will overcome this.

  • The Perez Family

    Many prayers your way Danny. The Lord and his glory will be with you. All of OLL is rooting for you ?

  • McDougle Family

    When prayers go up... blessings come down! Praying for you and your family!!!

  • Sebastian Paz

    You’re an inspiration to us all!! Adelante my brother!!! Prayers your way!!!

  • Jennifer espinosa & family

    We are praying for you and your family Danny! Stay strong!

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