Our journey started on the early morning of September 24th. Emerson was just about 3 months old. We brought her into the ER (Summerlin Hospital) in Las Vegas because we thought she was sick and dehydrated (both parents had been sick with the common cold previously). They ran tests. We could never have been prepared with the news that the doctor brought back. He said Emerson was in congestive heart failure. From that moment, our world fell apart, changed forever and became a whirlwind.
We were transferred to a children’s hospital (Sunrise) in Las Vegas. The cardiologist did an echo and immediately knew that Emerson was in big trouble and worked to get us transferred where she could get more help than they could do. He immediately felt she would need a heart transplant, and Sunrise does not do that. So, that night, we were sent off to Loma Linda University Hospital in California.
Emerson’s official diagnosis is dilated cardiomyopathy (very rare). This affects the muscle of the he...