Seesaw Mania

Today was a good day. This weekend was a good weekend. And that is VERY surreal. Our first two weeks home from St. Louis seemed like a dream as we began to experience everything we hoped the transplant would bring. However, the road since then has been very nerve wracking. Erin has continued to struggle with massive migraines, stomach pains and side effects of her diabetes. She still has days she can barely get off the couch, bringing flashbacks of pre-transplant life. There hasn't been any jogging since those first few weeks, barely walking some days, and yet she no longer has hours of treatments or tube feedings. Not to mention she can actually breathe now. Two and a half weeks ago she walked two hours through the Milwaukee Zoo in 80 degree weather! And then, three days later she was admitted to St. Vincent Hospital in Green Bay for pneumonia. After four days she was released yet still felt very weak. Then the pendulum swung the other way this weekend as we headed down to Fond du Lac for ‘Family Weekend’ with my family. She spent hours playing cards, yard games, eating, laughing and enjoying family and life. Tomorrow is her little sister’s fifth birthday, here’s hoping the pendulum doesn't swing back anytime soon.aw Mania

Today was a good day. This weekend was a good weekend. And that is VERY surreal. Our first two weeks home from St. Louis seemed like a dream as we began to experience everything we hoped the transplant would bring. However, the road since then has been very nerve wracking. Erin has continued to struggle with massive migraines, stomach pains and side effects of her diabetes. She still has days she can barely get off the couch, bringing flashbacks of pre-transplant life. There hasn't been any jogging since those first few weeks, barely walking some days, and yet she no longer has hours of treatments or tube feedings. Not to mention she can actually breathe now. Two and a half weeks ago she walked two hours through the Milwaukee Zoo in 80 degree weather! And then, three days later she was admitted to St. Vincent Hospital in Green Bay for pneumonia. After four days she was released yet still felt very weak. Then the pendulum swung the other way this weekend as we headed down to Fond du Lac for ‘Family Weekend’ with my family. She spent hours playing cards, yard games, eating, laughing and enjoying family and life. Tomorrow is her little sister’s fifth birthday, here’s hoping the pendulum doesn't swing back anytime soon.

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