Worth every penny
What a celebration!!! Last night's benefit at Jimmy Seas raised over $10,000!!! We are so grateful for everyone's support. Have no fear Erin is working hard for each and every one of those dollars. Today marks 2 weeks since her surgery and she continues to make great strides. Today that included a shower and a long walk. IV medications were stopped Friday because the infection the donor lungs had at transplant time is no longer present. She continues to be on fluids to help with her kidney function which has taken a hit with all the immunosuppressants. We are still trying to find the right insulin dose for her night time feeds and a good eating schedule that works with her body. Thursday we had an echocardiogram to investigate a heart murmur the doctor found. The doctor believes there is some scar tissue buildup where the new lungs were connected which is causing the murmur and may also be the reason for the blood flow to the left lung to be lower. At her two month bronchoscopy they will do a procedure to place a balloon at that location and see if there are any other blockages. We are hoping to be discharged early this week. Right now her biggest concern is her kidney number, but that is improving slightly and an ultrasound yesterday did not show any additional concerns. Minor hiccups still include a radiating rash, nausea, stomach pain, and intense nerve pain in her leg.