Ezra is a 3-year-old rambunctious boy full of life! His current loves in life are PJ Masks, Balls, and Cars. He loves laughing and playing chase. He also loves snuggling with his mommy. Ezra resides in Springtown, Texas, and is being raised by a single mom, Krystal Patterson, who is doing a fantastic job juggling life and kids given multiple unfortunate circumstances. Ezra gets to spend his days with his mommy, big sister, Serinity, who is 9 with mental disabilities, and has another sister, Baby Paislee who is 4 months old.
When Ezra was born in March of 2016, he was diagnosed several issues. He was born with small kidneys that have multiple functional issues such as Posterior Urethral Valves, which ultimately has caused him to be born with End Stage Renal Disease. He was born in stage V of Chronic Kidney Disease (CKD). He also has osteodystrophy, hyperparathyroidism, hypospadias, anemia, and a heart murmur.
Doctors did not think this little guy was going to make it, but God had bigger plans! Ezra will need a life-saving kidney transplant. Until then, Ezra gets dialysis! He started on in home Peritoneal Dialysis and was on it for two and a half years before he got a nasty infection and now has to do Hemodialysis three days a week at Dallas Children’s, which is an hour or more drive from home! His treatments are also at 6 am so it makes for early mornings for mom. Also, due to having the kidney disease, he has oral aversion issues and has been tube fed since he was around 3 months of age. He gets fed formula throughout the day and gets longer feeds at night via a feeding pump he is hooked up to. He also takes daily medications to keep his kidneys working the best they can until we he weighs enough for a kidney transplant -- which he is currently going through transplant work up so he can be fully listed. He sees 5 different specialists, does physical therapy and speech!
We are SOO close at 14 kilos! Our goal is to raise money for COTA in honor of Ezra to assist with transplant-related expenses. He will have to stay in the hospital for a while once the transplant is complete and mom will need to be close by. There are a lot of costs that go into a transplant, which is why Ezra’s family partnered with COTA, a nonprofit that helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support. This family needs all the help they can get to make this as successful as possible for little Ezra!
We are still trying to raise an estimated $50,000 for COTA in honor of Ezra. We are so thankful to all who have supported us throughout our journey and a special shout out to all of the people who have donated to COTA, as well as all of the wonderful people that have contributed in other ways to help out.