Our Story

Hi my name is Nevaeh! I was diagnosed with dialated cardiomyopathy on March 20, 2018 at the age of 5 months old. No one knew I had it until I started to have labored breathing so my mommy took me to a pediatricians appointment to find out what was wrong. The pediatrician did not understand why I was breathing so fast. So my mommy took me to the ER, and...

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Updates

Happy 5th Heartiversary!

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Today we remember you sweet little one, for the gift of life that you gave to our sweet Nevaeh. No words can ever express the extreme gratitude that... Continue Reading »

5th Year Heartiversary!

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Today we remember you sweet little one, for the gift of life that you gave to our sweet Nevaeh. No words can ever express the extreme gratitude that... Continue Reading »

Happy 3rd Heartiversary

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It’s so amazing that we have been given the gift of life with this tough, amazing, outgoing and sweetest little ray of sunshine! All of this thanks to... Continue Reading »

Catching up!

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        We definitely needed an updated blog, here we go! There has been so much time for us to spend as a family, it has... Continue Reading »

Happy 2nd Heart Anniversary

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    Here we are now with a 2 ½ year old celebrating her 2 year Heartiversary, how did this happen?! We always have Nevaeh’s donor to thank... Continue Reading »

What new?!

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  I know it has been a couple of month’s since I have updated Nevaeh’s blog. I always think to myself, “no news is good news”. That’s an... Continue Reading »

Speaking Light

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The end of July Nevaeh had her transplant surgery to check for rejection and to see how her heart is doing overall. All function of her heart looks... Continue Reading »

Isaiah 43:2

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June was a very busy month for Nevaeh, she got pneumonia and had to have her procedure for transplant rescheduled twice. Also the immunosuppressant that was causing her... Continue Reading »

Surprise!

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  It’s true we have been waiting to tell y’all some amazing news! So many things have happened in the month of May and it has been one... Continue Reading »