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Our Story

Hi my name is Nevaeh! I am 6 months old. I was diagnosed with dialated cardiomyopathy on March 20, 2018 at the age of 5 months old. No one knew I had it until I started to have labored breathing so my mommy took me to a pediatricians appointment to find out what was wrong. The pediatrician did not understand why I was breathing so fast. So my mommy took me to the ER, and that is when we found out that I had a big heart. I am normally a very playful and happy baby. My mommy and daddy love me so very much! I was blessed with the opportunity to be on the heart transplant list to receive a heart from a wonderful family who would donate it to me. On the night of May 8, 2018, we got the news that I would have a transplant and receive a heart. May 9th I went into surgery! My family has been so happy to be with me all the time, and are trying to keep a blog going so everyone who wants to read my story can learn more about me!

The Children's Organ Transplant Association (COTA) helps children...

Updates

 

Just Breathe

seeing Nevaeh on ECMO for 2 days was so scary. Her team kept telling us “hopefully” her heart function would return. Being hopeful in this  circumstances huge for us! A chance for our baby to have a new chance at life! Every minute that went by Continue Reading »

Gift of Life

After being listed for a heart transplant on March 26,2018, we received a call the night of May 8,2018 that Nevaeh had a donor that was compatible with her blood type. What a blessing it was to hear such amazing news!!! We were crying for joy and of Continue Reading »

The Wait

Everyday is a different, some days are better than others. We look at the bright side as a family! Nevaeh is waiting for a donor, and that is a hard mind set to put ourselves in. Knowing that she can’t live with her own heart hurts so much. Seeing Continue Reading »