6 weeks

 Seeing Nevaeh’s face after her trach was such an amazing thing. I feel like she has grown a lot in the past 6 weeks. The tape that was holding the breathing tube in her mouth was covering her mouth and her cheeks, it had been awhile sense we had seen her whole face. When she came out of the tracheotomy surgery she was smiling so much! So for 5 days she had to be completely still so that her stoma (hole where the trach goes in) could heal. On the 5th day when the ENT’s (ear, nose, and throat specialist) were going to come in and do a trach change, it felt like it was taking so long for them to be there. Even though it had only been a few hours. We all had been waiting for the past 5 days for Nevaeh to be able to move around, and wake up. At last after the trach change they turned of her sedation that was keeping her asleep the past five days. It took her 4 hours to fully wake up. When she did wake up she was still super sleepy, and coming off of the medication. But she was breathing against the vent so we new she was off to an amazing start! After talking to the team, and seeing what there prospective is on how Nevaeh is thriving they think it could be just a few more weeks, and Nevaeh will be able to go home! We have already got her room together, and set up for our sweet girl to be home! Every single one of us can’t wait for our girls to be together again! Marlee has been spending a lot of time at the hospital with Nevaeh lately. It amazes me when Marlee comes in to see Nevaeh that all she sees is her sister. She will sit and talk to her, and ask her for hugs, it is the sweetest thing! We can’t wait for our family to be back together again. And it is closer in veiw now that Nevaeh a getting the help that she needs!


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