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Our Story

Hi my name is Nevaeh! I was diagnosed with dialated cardiomyopathy on March 20, 2018 at the age of 5 months old. No one knew I had it until I started to have labored breathing so my mommy took me to a pediatricians appointment to find out what was wrong. The pediatrician did not understand why I was breathing so fast. So my mommy took me to the ER, and that is when we found out that I had a big heart. I am normally a very playful and happy baby. My mommy and daddy love me so very much! I was blessed with the opportunity to be on the heart transplant list to receive a heart from a wonderful family who would donate it to me. On the night of May 8, 2018, we got the news that I would have a transplant and receive a heart. May 9th I went into surgery! My family has been so happy to be with me all the time, and are trying to keep a blog going so everyone who wants to read my story can learn more about me!

The Children's Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support. COTA is the nation’s only fundraising organization solely dedicated to raising life-saving dollars in honor of transplant-needy children and young adults. 100% of each contribution made to COTA in honor of our patients helps meet transplant-related expenses. COTA’s services are free to our families, and gifts to COTA are tax deductible to the fullest extent of the law.


  • thomas


  • Misti Ennis

    You made this so cute, I couldn't help to giggle. I think this is exactly what Nevaeh would want it to say! It made me cry and giggle all at the same time. Gosh little girl, thank you for bringing our family closer together and thank you for letting us visit you! We all love you more than anything and we are glorifying Jesus on behalf of the courage you have brought us!!!

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