Raith is a sweet, kind and fun-loving 13-year-old boy. He loves playing baseball, snowboarding and playing video games.
Raith’s latest medical journey began nearly two years ago with sporadic yet severe bouts of joint pain. His ankles, knees or hips would inexplicably hurt so badly that he could barely walk. The next day however, he would be fine again. Several office visits with local doctors over the following months yielded no significant explanations other than potential growing pains. During his spring break last year Raith became quite sick, and his joint pain became so severe that he was unable to walk, much less return to school following break. Another trip to a local doctor had a variety of labs drawn. One of the labs uncovered a problem with Raith’s kidney function. The doctor recommended he visit the ER at Children’s Primary Hospital in Salt Lake City, about a four hour drive away; he was admitted there that night.
A bevy of tests over the following few days yielded a...