Blog

Happy Gift of Life Day, Zoe!

The Other Side.  In the world of Biliary Atresia and liver disease, people refer to post transplant as “The Other Side,” “Welcome to the other side” “It gets...

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Happy 1st Birthday!

Happy 1st Birthday to my littlest peanut! Lots of news to share, but first: Segment of deceased donor liver: On Monday I talked with the transplant coordinator and...

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PELD of 40 approved!

Friday I received word that Zoe's score was approved at 40 points.  That means we could get the call any time!  I started packing a bag so we...

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Request for PELD score of 40

Yesterday I got a shocking email from the transplant coordinator. She said that when the team met to discuss the patients listed for transplant, they decided to request...

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Tuesday 2/6

Where to start?! I am way too long winded when I type so I’ll try to break this up. Maybe when I am ready to return to my...

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How have I changed?

How have I changed? But first, Zoe is now on her THIRD antibiotic. When her labs were worse on Monday, the team consulted with Infectious Disease and decided...

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Monday 1/22 update

So, Zoe's labs today are worse.  I already figured by just looking at her.  She's still eating, and in fact wanting to eat a little bit more than...

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