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Our Story

Zoe Anderson is an eleven-month-old resident of Fishers, Indiana.  She is the daughter of Carly and Seth Anderson.  She is starting to sit up, loves to shake and chew on toys and loves to watch her brothers play-she lights up when they enter the room.  
 
At 6 weeks old, Zoe’s parents started noticing something wasn’t right.  After a visit to the pediatrician, lab work and scans, she was diagnosed with a rare liver disease called Biliary Atresia.  Zoe had her first life-saving surgery, known as the Kasai procedure at 8 weeks old.  There is no cure for Biliary Atresia, and the next step will be a liver transplant.  Biliary Atresia is a liver disease in which one or more bile ducts is abnormally narrow, blocked or absent.  As a result, bile doesn’t leave the body as it should causing further damage to the liver and issues with growth and nutrition.  
 
The estimated cost of Zoe’s transplant surgery exceeds $500,000, with additional costs for post-transplant medication and care.  Volunteers are working to raise an estimated $50,000 to assist with transplant-related expenses.  They have asked the Children’s Organ Transplant Association (COTA) for help.  COTA is a national charity dedicated to organizing and guiding communities in raising funds for patients in need of a life-saving transplant.  
 
All donations are fully tax deductible.  100% of all funds raised are used to assit with transplant-related expenses. 

Comments

  • Rick Lofgren, COTA President

    Greetings from COTA! I want to congratulate the COTA for Team Zoe A volunteer team for a great effort raising funds for the campaign in honor of Zoe! When I set the campaign fundraising goals with all of our families, I try to do so knowing that some communities and volunteer teams have more developed resources and connections than others, and in fundraising these are critical to success. With this in mind, I usually suggest a goal to COTA patients that I believe is needed for any patient’s long-term expenses and transplant-related costs, and the goal generally reflects the next four to five years of out-of-pocket costs. For example, most of our patients will have $5,000 in annual co-payments, deductibles, and medications, as well as another $5,000 or more of additional costs for clinic visits. This could mean $25,000 - $30,000 for any patient in two or three years after transplant. In this case, because your team and supporters have done such a great job with the campaign, and with Zoe’s ongoing care while she awaits her transplant, I spoke with Carly this week and suggested that we amend the goal to better reflect the actual expenses. Because of this, I have raised the goal for the COTA for Team Zoe A campaign from $50,000 to $100,000 to better reflect what we believe will be actual costs going forward for the next several years, and a lifetime of medical expenses. Thank you for all the work and support you have provided to this point, and please keep the entire family in your prayers as Zoe continues along her transplant journey!

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