Our Story

Our Story Adam is a student at Arizona State University studying mathematics and statistics. Drawing from statistics terminology, he was born with an outlier health condition – a rare problem with his immune system called common variable immunodeficiency. About 1 in 25,000 have CVID. It is worth noting that CVID is considered a primary immune deficiency, so is not acquired by an infection. In fact, the opposite is true. CVID...

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Updates

Emergence

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Adam has had the strength to survive so many health challenges — liver disease and transplant, lymphoma, immune deficiency and a bone marrow transplant. Today, he is cured... Continue Reading »

Goal Increase

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The fundraising goal has recently been updated per a conversation between Adam’s family and Rick Lofgren, COTA President & CEO. This letter below from Rick explains the recent... Continue Reading »

Adam’s story featured by Phoenix Children’s Hospital

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Meet Adam, an amazing teenager who recently endured some very serious health issues. However, his experience was a life lesson in disguise and Adam learned a lot about... Continue Reading »

Lifeguard job 1-yr post chemo, 1.5-yr post-transplant

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Chandler Lifestyle magazine covers The Mulligan

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Chandler Lifestyle Magazine covered The Mulligan a May 6 golf tournament in the July 2021 edition, which will be in mailboxes soon.  The tournament celebrated a lifesaving do-over—Adam's liver... Continue Reading »

Accepted to ASU and other recent shots

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Cancer-free at 9-month checkup!

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Adam was given the all clear for another three months, when his oncologist told him his labs and scan both look clear. No lymphoma was detected! We are... Continue Reading »

One-year transplant anniversary

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Waiting to live: podcast mirrors Adam’s journey

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This podcast from down under mirrors much of what Adam underwent waiting for a new liver. It tells the story of 30-year-old Matt, who like Adam, also had PSC an autoimmune... Continue Reading »