Our Story

As many of you know, Keagan is currently in Houston Texas waiting for a double lung transplant where he and I (mom) have been residing  and waiting since January of 2018 while his dad Robert and his sister McKenna continue to reside in Nebraska at our home. Keagan is 7 years old and has been on a ventilator and oxygen his entire life. He was born premature weighing 1 lb...

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Updates

Keagan

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6 month post double lung transplant

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We made it to Houston for Keagan’s 6 month post double lung transplant appointments! Keagan flew commercially for the first time as he could only fly by Medical... Continue Reading »

We are going home!!

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We are on our way HOME after living in Texas for the past 14 months! We can’t wait to see everyone. I know there are so many that... Continue Reading »

Fun times! Living life with my new lungs!!

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We were sad to say see you later to Grandma but hopefully that was the last time!!  We had a busy week of appointments and hanging out with... Continue Reading »

THANK YOU!!!!!

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we want to say thank you to everyone that has supported us through COTA. We would not be where we are today without all of you kind and... Continue Reading »

De-cannulated today

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Check out this kid!!! He just got his trach out and is breathing for the first time on his own in 7 years!! This is all because someone... Continue Reading »

New Year

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Happy New Year! Three weeks ago at this time Robert and I were waiting just two hours into Keagan’s double lung transplant surgery! 2018 blessed us with the... Continue Reading »

Happy NEW LUNGS Day!!!

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We received a call on Sunday, December 9th that there was an offer for lungs for Keagan. We were toks tonarrive at Texas Childrens Hospital at 7am to... Continue Reading »

COTA Benefit in honor of Keagan Sullivan

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On Saturday, November 10th the Plainview Highway 20 Hotrod Assocation will be hosting its annual appreciation dinner and will be auctioning off a quilt as well as having a... Continue Reading »