Our Story
Alyssa is 15 years old, she was diagnosed with Cystic Fibrosis at age 6 mos. She was later diagnosed with CF related diabetes at age 11, and CF liver disease at age 12. CF primarily affects the lungs and digestive system. A defective gene causes a thick sticky buildup of mucus in lungs, pancreas, and other organs. Alyssa never let CF hold her back. She was very involved in sports,...
Continue Reading »Updates
Motorcycle winner
Posted
The winner of the motorcycle was ticket #115 Patrick Flanagan. If you would like to watch the drawing please visit Liver4lyss on Facebook. Thank You for everyone who... Continue Reading »
Uncertainty
Posted
So, Alyssa’s AFB smear came back positive for micro bacterium. The doctors aren’t sure yet what they are going to try. This is the same infection she was... Continue Reading »
Sick again
Posted
and just like that! Her health changes in a heart beat. She woke up this morning with a terrible cough, coughing up nasty mucus. Hoping it passes quickly.... Continue Reading »
Check up
Posted
So we drove to Cincinnatti Childrens Hospital today for a check up. Her doctor said everything looks good. All of her lab work was stable. And hopefully she’ll... Continue Reading »
Lots of accomplishments
Posted
so in the past week Alyssa has hung out with a friend for the first time in almost 5 months! Definitely an improvement in the way she’s feeling.... Continue Reading »
Overwhelming generosity
Posted
we are surrounded by people who love us. Their support and generosity means so much to us. The 2nd fundraising meeting was yesterday. They have so many wonderful... Continue Reading »
Finally eating
Posted
while Alyssa was on IV antibiotics she wasn’t able to eat. She drank boost and we made smoothies for her. After 48 hours off of IV she is... Continue Reading »
Progress
Posted
Yesterday, after 79 days Alyssa finally got her PICC line removed. For me that means not having to get up at 2:30 AM to warm her meds to... Continue Reading »
Fundraising
Posted
so we got approval today for our first big fundraiser. We will be doing a walk/run in July. We had to appear in front of our local park... Continue Reading »