Our Story

Alyssa is 15 years old, she was diagnosed with Cystic Fibrosis at age 6 mos.  She was later diagnosed with CF related diabetes at age 11, and CF liver disease at age 12.  CF primarily affects the lungs and digestive system. A defective gene causes a thick sticky buildup of mucus in lungs, pancreas, and other organs.  Alyssa never let CF hold her back. She was very involved in sports,...

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Updates

Motorcycle winner

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The winner of the motorcycle was ticket #115 Patrick Flanagan. If you would like to watch the drawing please visit Liver4lyss on Facebook. Thank You for everyone who... Continue Reading »

Uncertainty

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So, Alyssa’s AFB smear came back positive for micro bacterium. The doctors aren’t sure yet what they are going to try. This is the same infection she was... Continue Reading »

Sick again

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and just like that! Her health changes in a heart beat. She woke up this morning with a terrible cough, coughing up nasty mucus. Hoping it passes quickly.... Continue Reading »

Check up

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So we drove to Cincinnatti Childrens Hospital today for a check up. Her doctor said everything looks good. All of her lab work was stable. And hopefully she’ll... Continue Reading »

Lots of accomplishments

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so in the past week Alyssa has hung out with a friend for the first time in almost 5 months! Definitely an improvement in the way she’s feeling.... Continue Reading »

Overwhelming generosity

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we are surrounded by people who love us. Their support and generosity means so much to us. The 2nd fundraising meeting was yesterday. They have so many wonderful... Continue Reading »

Finally eating

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while Alyssa was on IV antibiotics she wasn’t able to eat. She drank boost and we made smoothies for her. After 48 hours off of IV she is... Continue Reading »

Progress

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Yesterday, after 79 days Alyssa finally got her PICC line removed.  For me that means not having to get up at 2:30 AM to warm her meds to... Continue Reading »

Fundraising

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so we got approval today for our first big fundraiser. We will be doing a walk/run in July. We had to appear in front of our local park... Continue Reading »