{"id":29,"date":"2019-04-14T00:00:00","date_gmt":"2019-04-14T00:00:00","guid":{"rendered":"https:\/\/cota1.wpengine.com\/cotaforarabella\/2019\/04\/14\/whats-behind-a-door\/"},"modified":"2019-04-14T00:00:00","modified_gmt":"2019-04-14T00:00:00","slug":"whats-behind-a-door","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforarabella\/2019\/04\/14\/whats-behind-a-door\/","title":{"rendered":"What&#8217;s Behind a Door?"},"content":{"rendered":"<p>This week marked our official return to Louisville. &nbsp;To home. &nbsp;Arabella &amp; I lived in our apartment &nbsp;for six months. &nbsp;We arrived in October as two weary souls, tired of the trek to Cincinnati and knowing that things were only going to get more intense. &nbsp;After placing a hemodialysis catheter, Arabella had to start doing hemodialysis 3 times a week with peritoneal dialysis the other four nights, initially for 12 hours a night. &nbsp;We couldn&#8217;t continue driving back and forth. &nbsp;We knew a transplant date was set for December, but with so many disappointments, we were focused on not getting our hopes up. &nbsp;Simultaneously, we were fully prepared for the immediate return of Arabella&#8217;s disease if we made it to transplant. We realized that the fight we had was nothing compared to the fight we were facing. &nbsp;Bringing in furniture was the lightest weight we carried on this move. &nbsp;The first night while we slept in our apartment, someone stole the car magnets that told of Arabella&#8217;s need for a kidney right off our car.<\/p>\n<p>November brought Thanksgiving. With a big dinner planned, we learned that Jeff &amp; AJ couldn&#8217;t join us because of sickness. &nbsp;They ate at Waffle House as we were separated as a family for our favorite holiday. In December, Arabella&#8217;s blood pressure continued to rise during dialysis and they increasingly kept her later and longer. &nbsp;She was frustrated and those days were tedious. &nbsp;But before we knew it, we were buying our first live Christmas tree and waiting for my sister and friend to arrive before surgery. &nbsp;Arabella spent Christmas in the hospital with the greatest gifts of &nbsp;bathroom breaks and NO DISEASE RETURN!! &nbsp;January gave us frequent visits with her team and a hospitalization where drug toxicity was identified. &nbsp;By February, Arabella&#8217;s spirits needed a boost, so we snuck away to Carmel, Indiana where she got to swim in a hotel pool&#8230;swimming for the first time in 20 months! &nbsp;March arrived quickly and the end of our days in our little haven was in sight. &nbsp;<\/p>\n<p>It&#8217;s hard to articulate what our months in Cincinnati meant to us. &nbsp;Arabella has cried each night since we returned, missing our home-away-from home. &nbsp;During our six months, we literally never met a neighbor. &nbsp;We know the man across the porch from us loved to get DoorDash food delivery. And the lady down the hall would say hello if we spoke first. &nbsp;The bottom line is that we left without anyone knowing what was going on behind our door&#8211;no one knew there was a closet in our living room holding cases of medical supplies or that a child lived there who rarely slept after transplant because of steroids. &nbsp;No one knew that a mother was inside caring for her daughter while grieving the loss of time with her son 100 miles away. &nbsp;As I closed the door the last time, I thought about how Arabella had her final dialysis treatment inside that apartment and how we both healed from surgery within those walls. &nbsp;No one knows what happens behind a closed door, but chances are it&#8217;s both miraculous and mundane. Although we never met a neighbor, we knew during that time that we were never alone. &nbsp;Thanks for coming along on our journey.<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/cota.org\/uploads\/291\/images\/Door.JPG\" alt=\"\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>This week marked our official return to Louisville. &nbsp;To home. &nbsp;Arabella &amp; I lived in our apartment &nbsp;for six months. &nbsp;We arrived in October as two weary souls, tired of the trek to Cincinnati and knowing that things were only going to get more intense. &nbsp;After placing a hemodialysis catheter, Arabella had to start doing [&hellip;]<\/p>\n","protected":false},"author":0,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-29","post","type-post","status-publish","format-standard","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/cota.org\/cotaforarabella\/wp-json\/wp\/v2\/posts\/29","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cota.org\/cotaforarabella\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cota.org\/cotaforarabella\/wp-json\/wp\/v2\/types\/post"}],"replies":[{"embeddable":true,"href":"https:\/\/cota.org\/cotaforarabella\/wp-json\/wp\/v2\/comments?post=29"}],"version-history":[{"count":0,"href":"https:\/\/cota.org\/cotaforarabella\/wp-json\/wp\/v2\/posts\/29\/revisions"}],"wp:attachment":[{"href":"https:\/\/cota.org\/cotaforarabella\/wp-json\/wp\/v2\/media?parent=29"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}