{"id":9,"date":"2015-12-15T00:00:00","date_gmt":"2015-12-15T00:00:00","guid":{"rendered":"https:\/\/cota1.wpengine.com\/cotaforbrooklynf\/2015\/12\/15\/why-75000\/"},"modified":"2015-12-15T00:00:00","modified_gmt":"2015-12-15T00:00:00","slug":"why-75000","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforbrooklynf\/2015\/12\/15\/why-75000\/","title":{"rendered":"Why $75,000?"},"content":{"rendered":"<p>Perhaps you&#8217;ve seen our $75,000 fundraising goal and wondered one of the following things:<\/p>\n<p>1) Good gracious, that&#8217;s high! How will they ever reach that goal?<\/p>\n<p>2) Is that the cost to buy a liver???<\/p>\n<p>3) Why isn&#8217;t this covered by insurance?<\/p>\n<p>So let&#8217;s quell our&nbsp;curiosities today, shall we?<\/p>\n<p>1)&nbsp;COTA&nbsp;helped us determine our fundraising goal. &nbsp;They have 20+ years of experience in helping families with transplant-related expenses. &nbsp;(We have 0 years experience, so we appreciated their expertise!) &nbsp;And YES, this is a lot of money to raise! &nbsp;We&#8217;re only going to reach it with the provision of the Lord through the help of people like you&#8211;one dollar at a time!<\/p>\n<p>2) You can NOT buy a liver. &nbsp;Believe me, if you could stroll through the aisles of Target, place a liver in your big red cart, and&nbsp;receive 5% off with your&nbsp;RedCard&nbsp;while checking out, we would have it made. &nbsp;\ud83d\ude09 &nbsp;But you can&#8217;t do that, and that&#8217;s not what the&nbsp;goal covers. &nbsp;The $75,000 fundraising goal was compiled by looking at the breakdown of current transplant-related (pre-transplant) and post-transplant for up to five years and&nbsp;then making an estimation of the sum of those costs.<\/p>\n<p>3) We actually have great insurance, provided through Nick&#8217;s employer, and they WILL cover the cost of the transplant. &nbsp;However, there are a few caveats: we must have the transplant performed at one of the medical centers on their compiled list (there are no qualifying pediatric liver transplant programs in Memphis on their list&#8230;as a result, we have chosen a program in Chicago). &nbsp;There is obviously a cost to stay insured, and there is also an amount that we are required to pay annually out of pocket. &nbsp;If we are in good standing with payment on our premiums and we have reached our out of pocket max (currently $5,000 for our family), then our insurance will pay 100% of our medical bills&#8230;until the next calendar year, when the deductible\/out of pocket max starts over. &nbsp;<\/p>\n<p>&#8212;<\/p>\n<p>I feel the need to share with you that our &#8220;yes&#8221; to Brooklyn was a blend of responsible, practical conversations and decisions of faith. &nbsp;We didn&#8217;t hastily make the decision to adopt a critically ill child without weighing the costs and responsibilities. &nbsp;And yet, the cost of caring for a child waiting for, receiving, and recovering from a transplant is enormous for any family. &nbsp;Most families don&#8217;t volunteer for this. &nbsp;And although we did, we recognized that we would need to lean on the support of our friends and family like every other family does. &nbsp;<\/p>\n<p>So what does the $75,000 cover? &nbsp;The short answer is:&nbsp;<strong>COTA&nbsp;provides support for transplant-related expenses that our insurance does not cover.<\/strong><\/p>\n<p>To give you a clearer picture, this includes the cost of:<\/p>\n<ul>\n<li><strong>Routine visits to Chicago for pre-transplant check-ups<\/strong>: We are required to see Brooklyn&#8217;s GI doctors every 3-4 months until transplant. &nbsp;These expenses include airfare, transportation within the city, lodging, food, etc for our family as well as the medical bills\/copays&nbsp;incurred during these visits.<\/li>\n<\/ul>\n<ul>\n<li><strong>Transplant-related emergencies&nbsp;<\/strong>: This fall,&nbsp;Brooklyn had an&nbsp;unexpected infection that landed her in the&nbsp;hospital&nbsp;here in Memphis for a week. &nbsp;It was a stressful time (and during&nbsp;Rhet&#8217;s&nbsp;first week of&nbsp;Kindergarten!), and one of the biggest stressors for me was: are we incurring a&nbsp;ginormous&nbsp;hospital bill that we won&#8217;t be able to afford? &nbsp;In addition to scary complications that could arise due to her liver failure, Brooklyn&#8217;s immune system is also just very fragile, and she always runs the risk of getting an illness that she can&#8217;t shake off without a&nbsp;hospital stay.<\/li>\n<\/ul>\n<ul>\n<li><strong>Time of transplant<\/strong>: When Brooklyn receives her transplant, she will be in the hospital for an estimated minimum of 2 weeks and most likely longer. &nbsp;Nick will take time off from work, we will have a caretaker staying with&nbsp;Rhet, and Nick and I will basically live in Chicago until we get the green light to return home. &nbsp;(In addition to inpatient time in the hospital, the GI team will require that we stay in Chicago for a minimum of one month post-transplant in order to observe Brooklyn&#8217;s recovery.) &nbsp;After we return home, we will take Brooklyn back to Chicago every week for a month, every other week for a few months, and then every month for the remainder of one year post-transplant in order for the GI team to monitor her transplant recovery. &nbsp;During this extended time and each of these subsequent trips, there will be transportation and living expenses incurred.<\/li>\n<\/ul>\n<ul>\n<li><strong>Co-pays and supplements<\/strong>: Currently, Brooklyn is on two prescribed medications and two prescribed vitamin supplements. &nbsp;We are responsible for the co-pays for the medications, and because insurance won&#8217;t cover supplements, we incur 100% of the retail costs for the supplements. &nbsp;(Would y&#8217;all ever believe those two water-soluble vitamins cost $150 if they&#8217;re picked up from the pharmacy?!) &nbsp;In addition, Brooklyn has been on a supplemental formula ever since we have brought her home&#8230;her infant formula used to cost $40 per can every 3 days or so and her new pediatric formula costs about $130 per week. &nbsp;After transplant, Brooklyn will start on about 10 medications and over the course of the next few years, they&#8217;ll wean her down to 1-3 meds, which she will take for the remainder of her life. &nbsp;<\/li>\n<\/ul>\n<p>This gives you a little window into the daily costs of Liver Transplant World. &nbsp;We are incredibly thankful for&nbsp;COTA&nbsp;and the huge weight they&#8217;re able to lift off our shoulders. &nbsp;No lie, I cried when I had my first phone call with them&#8211;they seemed too good to be true. &nbsp;And we are so thankful for YOU, friends, for walking alongside us on this journey. &nbsp;The amazing thing about&nbsp;COTA&nbsp;is that they will support Brooklyn for the duration of her LIFETIME. &nbsp;Thank you&nbsp;COTA, and thank you friends, for joining us in saying yes to Brooklyn!<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Perhaps you&#8217;ve seen our $75,000 fundraising goal and wondered one of the following things: 1) Good gracious, that&#8217;s high! How will they ever reach that goal? 2) Is that the cost to buy a liver??? 3) Why isn&#8217;t this covered by insurance? So let&#8217;s quell our&nbsp;curiosities today, shall we? 1)&nbsp;COTA&nbsp;helped us determine our fundraising goal. [&hellip;]<\/p>\n","protected":false},"author":0,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-9","post","type-post","status-publish","format-standard","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/cota.org\/cotaforbrooklynf\/wp-json\/wp\/v2\/posts\/9","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cota.org\/cotaforbrooklynf\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cota.org\/cotaforbrooklynf\/wp-json\/wp\/v2\/types\/post"}],"replies":[{"embeddable":true,"href":"https:\/\/cota.org\/cotaforbrooklynf\/wp-json\/wp\/v2\/comments?post=9"}],"version-history":[{"count":0,"href":"https:\/\/cota.org\/cotaforbrooklynf\/wp-json\/wp\/v2\/posts\/9\/revisions"}],"wp:attachment":[{"href":"https:\/\/cota.org\/cotaforbrooklynf\/wp-json\/wp\/v2\/media?parent=9"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}