{"id":116,"date":"2025-10-10T21:12:36","date_gmt":"2025-10-10T21:12:36","guid":{"rendered":"https:\/\/cota.org\/cotaforco\/?p=116"},"modified":"2025-10-10T21:12:37","modified_gmt":"2025-10-10T21:12:37","slug":"one-month-listed","status":"publish","type":"post","link":"https:\/\/cota.org\/cotaforco\/2025\/10\/10\/one-month-listed\/","title":{"rendered":"One month listed"},"content":{"rendered":"\n

One month later! We do not have a lot of updates except everyday we wonder if the phone will ring.

A few days after Cohen was listed his team asked for and received exception points which moved him up on the transplant list. We still don\u2019t know what to expect which makes this process so surreal.

In the meantime we are moving forward with our fourth living donor getting evaluated in a few weeks. This process always takes time as they have to coordinate flying to Stanford for multiple days of extensive tests. We are thankful for another family member being willing, while also praying a door opens up for Cohen soon.

We have had SO much encouragement from Cohen\u2019s school, his classmates\/teachers, his friends, and having a few play dates. We are trying to soak in slower days at home since we still need to avoid getting him sick as much as possible and he isn\u2019t attending school in person. Let\u2019s just say Cohen likes his actual teacher much more than mom-teacher telling him what to do \ud83e\udd72

In the waiting Cohen had labs rechecked this week. He has a high ammonia level that we are watching and adding a med back in for. One thing his liver hasn\u2019t historically done well is filter out the toxins as it should, which can be dangerous if they get too high. He had a few other labs off which are leading his Dr to do urine tests next week to look at some things related to his kidneys. He will get labs done next week again as well. We\u2019re also trying to keep up his weight as he hasn\u2019t been gaining and will see a dietician next week.

We just ask you continue to pray:
-Cohen\u2019s spirits and courage stay high (Avery’s too!)
-God will open the door for the right liver at the right time
-Cohen stays stable without complications in the waiting<\/p>\n\n\n\n

Thank you everyone for reading.. praying .. giving.. we are beyond grateful!<\/p>\n\n\n\n

-Jess<\/p>\n\n\n\n

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One month later! We do not have a lot of updates except everyday we wonder if the phone will ring. A few days after Cohen was listed his team asked for and received exception points which moved him up on the transplant list. 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